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Rare Disease Day Luncheon

Wednesday, February 28, 2018

1:00- 3:00 PM | Royal Sonesta Boston

Jett Foundation invites families affected by rare disease, industry and academic partners to celebrate Rare Disease Day 2018 at the 3rd Annual Rare Disease Day Luncheon at the Royal Sonesta, Cambridge, MA.

Every rare disease community faces challenges unique to their disorder. Join us for an open discussion over lunch about expediting and improving drug development in rare disease and balancing ethical considerations with access.


  • Skip Nelson, M.D., Ph.D., M.Div., Senior Director, Pediatric Drug Development, Child Health Innovation Leadership Dept. (CHILD), Johnson & Johnson

  • Robert Coughlin, President & CEO, Massachusetts Biotechnology Council

  • Richard Moscicki, M.D.,* Chief Medical Officer & Executive VP, PhRMA


  • Melissa Hogan, J.D., President, Project Alive

2018 Rare Disease Day Luncheon Sponsors


Rare Disease Day logo and imagery are the intellectual property of Eurordis Rare Diseases Europe, organizers of Rare Disease Day.®