Welcome Packet
Been diagnosed or want to learn more?
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About Duchenne
Facts, Treatment, and Care
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Duchenne News
The latest from our partners.
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Female Carriers
Resources, Care, and Programs
Community Ambassadors
Meet our Community Ambassadors
Clinical Trials
A quick look at investigational drug studies
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer Today
Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Toolkits
View our resources targeted toward volunteers.
Our Resources
Become a Partner
Learn about creating a partnership and joining our community.
Get Started
Host a Webinar
Learn about our community webinar series.
View Upcoming Webinars
Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
Get Started Volunteering
Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
Read Now
Book: Dan And DMD
This book will help parents and guardians as they prepare to talk to their children about Duchenne.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Request a Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
About Female Carriers
Facts and information about female carriers.
Learn More
Resources for Carriers
Tools and materials for female carriers.
Read More
Connect with our Specialist
Get support and help navigating your journey.
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
General Resources
Check out helpful tools and transition resources.
Find Resources
Transition Resources
GotTransition resources and tools.
Learn More
Camp Promise
Locations and information on how to apply.
Learn More
Community Webinars
Watch past recordings on care and resource topics.
Watch Now
Join Jett Foundation’s Community Webinar Series on March 23 at 1PM EST as we welcome Dr. Natalie Truba of Nationwide Children’s Hospital for a presentation and discussion on support for siblings of individuals with Duchenne, as well as managing jealousy, grief, and more while in a space of children who develop without Duchenne.
Supporting Siblings of Individuals with Duchenne
Thursday, March 23, 2023 | 1:00PM – 2:00PM EST
Dr. Natalie Truba earned her Ph.D. with emphasis in Clinical Psychology from Western Michigan University in 2016. She completed an APA accredited Psychology Internship through the Wright State University School of Professional Psychology/Dayton Children’s Hospital. Following internship, Dr. Truba completed Fellowship training in pediatric critical care at Nationwide Children’s Hospital. She is currently employed as an attending Psychologist at Nationwide Children’s Hospital and is primarily responsible for the inpatient psychological/behavioral health care needs of patients managed by Complex Care, Neuromuscular and/or Physical Medicine/Rehab teams.
Our Community Webinar Series is focused on ensuring that our Duchenne community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.
No one ever expects Duchenne and there is no correct way to tackle a diagnosis, but we can always better prepare. This webinar series is an opportunity to equip yourself with more knowledge, resources, and tools for those real-life, often unanticipated, scenarios.
Jett Foundation, Inc.
65 Cordage Park Circle
Suite 130 | Plymouth, MA 02360
781-585-5566 | [email protected]
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Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.