Welcome Packet
Been diagnosed or want to learn more?
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About Duchenne
Facts, Treatment, and Care
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Duchenne News
The latest from our partners.
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Female Carriers
Resources, Care, and Programs
Community Ambassadors
Meet our Community Ambassadors
Clinical Trials
A quick look at investigational drug studies
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer Today
Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Toolkits
View our resources targeted toward volunteers.
Our Resources
Become a Partner
Learn about creating a partnership and joining our community.
Get Started
Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
Get Started Volunteering
Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
Read Now
Book: Dan And DMD
This book will help parents and guardians as they prepare to talk to their children about Duchenne.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Request a Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
Join Jett Foundation’s Community Webinar Series on March 30 at 4PM ET as we welcome NS Pharma for a presentation and discussion on VILTEPSO, an FDA-approved treatment for Duchenne for patients amenable to exon 53 skipping.
VILTEPSO: An FDA-Approved Duchenne Treatment for Patients Amenable to Exon 53 Skipping
Thursday, March 30, 2023
4PM ET | 3PM CT | 2PM MT | 1PM PT
Chamindra Laverty (Konersman), MD, is a board-certified neurologist and neuromuscular specialist at UC San Diego Health, Rady Children’s Hospital and San Diego VA Health Systems. She provides speciality neuromuscular care to people with a range of neurologic conditions including hereditary motor neuron disease, inclusion body myositis, Guillain-Barré syndrome, myasthenia gravis, Charcot-Marie-Tooth disease, periodic paralysis, and all muscular dystrophies. She also participates in a wide range of clinical trials serving pediatric and adult patients.
Our Community Webinar Series is focused on ensuring that our Duchenne community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.
No one ever expects Duchenne and there is no correct way to tackle a diagnosis, but we can always better prepare. This webinar series is an opportunity to equip yourself with more knowledge, resources, and tools for those real-life, often unanticipated, scenarios.
Jett Foundation, Inc.
65 Cordage Park Circle
Suite 130 | Plymouth, MA 02360
781-585-5566 | info@jettfoundation.org
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