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Clinical Trials
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Book: Dan And DMD
This book will help parents and guardians as they prepare to talk to their children about Duchenne.
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Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year.
While we plan to be on the ground for all workshops, details are subject to change due to COVID-19 or other circumstances.
*Dates and locations are subject to change.
When: November 16, 2024
Where: Hilton Garden Inn Harrisburg East – 3943 Tecport Dr., Harrisburg, PA 17111
Vicky specializes in outpatient pediatric physical therapy at Penn State Health Therapy Services in Hershey, P.A. Vicky works with patients at Penn State Health’s MDA, ALS, Neuromuscular and Cerebral Palsy clinics. Vicky earned her Bachelor of Science at Albright College and her Master of Physical Therapy from the University of Delaware.
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Dr. Binu-John V. Sankoorikal is a pediatric pulmonologist in Hershey, Pennsylvania and is affiliated with multiple hospitals in the area, including Penn State Health Milton S. Hershey Medical Center and Penn State Health Children’s Hospital and is part of the Certified Duchenne Care Center at Penn State Health Children’s. He received his medical degree from Case Western Reserve University School of Medicine.
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Nicole Hahnlen RN, CHPPN has served as the nurse coordinator of Penn State Hershey Children’s Hospital Hummingbird Program since its inception in 2007. Drawing on a diverse background as a pediatric critical care nurse and child life specialist, Nicole now works to promote seamless care for patients with complex life-limiting medical conditions throughout all care arenas, including hospital, home, and their community. Nicole holds a B.S. in nursing from the Pennsylvania State University and a B.A. in family studies from Messiah University.
When: April 26, 2025
Where: University Of Iowa Hospitals & Clinics, 200 Hawkins Drive, Iowa City, IA 52242
Stay tuned for speaker and workshop details here.
When: May 17, 2025
Where: Children’s of Alabama – Bradley Lecture Center
Hotel Room Block: Hilton Birmingham Downtown at UAB (808 20th St S, Birmingham, AL 35205).
Stay tuned for speaker and workshop details here.
Through these workshops, we empower patients and families with the knowledge needed to be their own best advocates, spread awareness about Duchenne in the medical field, and help accelerate research and development.
During these workshops, you’ll hear from Duchenne clinicians, pharmaceutical companies in the Duchenne space, and local experts on topics like clinical trials, standard of care, physical therapy, adaptive sports, and much more. You’ll also learn about helpful resources and our direct service programs such as Camp Promise, Jett Giving Fund, and Community Ambassadors.
As we continue to host in-person workshops, we will also continue to host webinars virtually in order to reach more families across the world. Check out our upcoming webinars or previous recordings below!
Thank you to our generous sponsors for making our educational programming possible!
Jett Foundation, Inc.
65 Cordage Park Circle
Suite 130 | Plymouth, MA 02360
781-585-5566 | [email protected]
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Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.