Welcome Packet
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About Duchenne
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Duchenne News
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Transition Resources
GotTransition resources and tools.
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Community Ambassadors
Meet our Community Ambassadors
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Clinical Trials
A quick look at investigational drug studies
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Female Carriers
Resources, Care, and Programs
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Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Team Jett
Activate your muscles at events to raise awareness and funds for the Duchenne community.
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Resource Library
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Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
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Clinical Trials
A quick look at investigational drug studies.
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Duchenne News
Stay up to date with the latest discoveries.
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Dan and DMD & Other Books
These books will help parents, guardians, and individuals as they navigate a Duchenne diagnosis and journey.
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Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
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Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year.
*Dates and locations are subject to change.
When: April 11, 2026
Where: Salt Lake City Marriott University Park (480 Wakara Way, Salt Lake City, UT 84108)
If you have an interest in booking a hotel room, please click here. The room block will close on March 20, 2026. If you have any issues, or need accessible transportation from the airport, please reach out to [email protected]. Deadline to register for the workshop is April 1, 2026.
When: May 2, 2026
Where: DoubleTree by Hilton Hotel Portland (1000 NE Multnomah St., Portland, OR 97232)
If you have an interest in booking a hotel room, please click here. The room block will close April 2, 2026. If you have any issues, or need accessible transportation from the airport, please reach out to [email protected]. The deadline to register for the workshop is April 22, 2026.
When: August 8, 2026
Where: Exact Hotel and Workshop Location TBD
Registration and Details Coming Soon
Through these workshops, we empower patients and families with the knowledge needed to be their own best advocates, spread awareness about Duchenne in the medical field, and help accelerate research and development.
During these workshops, you’ll hear from Duchenne clinicians, pharmaceutical companies in the Duchenne space, and local experts on topics like clinical trials, standard of care, physical therapy, adaptive sports, and much more. You’ll also learn about helpful resources and our direct service programs such as Camp Promise, Jett Giving Fund, and Community Ambassadors.
As we continue to host in-person workshops, we will also continue to host webinars virtually in order to reach more families across the world. Check out our upcoming webinars or previous recordings below!
Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.