Family Workshops

Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year.

2024 Family Workshops

While we plan to be on the ground for all workshops, details are subject to change due to COVID-19 or other circumstances.

*Dates and locations are subject to change.

Additional Information

Through these workshops, we empower patients and families with the knowledge needed to be their own best advocates, spread awareness about Duchenne in the medical field, and help accelerate research and development.

During these workshops, you’ll hear from Duchenne clinicians, pharmaceutical companies in the Duchenne space, and local experts on topics like clinical trials, standard of care, physical therapy, adaptive sports, and much more. You’ll also learn about helpful resources and our direct service programs such as Camp Promise, Jett Giving Fund, and Community Ambassadors.

Community Webinar Series

As we continue to host in-person workshops, we will also continue to host webinars virtually in order to reach more families across the world. Check out our upcoming webinars or previous recordings below!

Sponsors

Thank you to our generous sponsors for making our educational programming possible!

Experience the magic this summer!

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

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