We are excited to host more in-person Family Workshops in 2023 and 2024. While we plan to be on the ground for all workshops, details are subject to change due to COVID-19 or other circumstances.
*Dates and locations are subject to change.
When: April 15, 2023 | 10:00AM-4:00PM EST
Where: Hilton University of Florida Hotel Conference Center, 1714 SW 34th St, Gainesville, FL 32607.
Registration for our April 15 Gainesville Family Workshop has closed.
Jonteriya Bedford is the Outpatient Pediatric Specialties Social Worker with UF Health Shands. Jonteriya is a native to Gainesville, Florida, graduating from Eastside High School in 2012. She received her AA in Social Work from Santa Fe College in 2019, BSW from Saint Leo University 2021, and MSW from the University of Kentucky in 2022. Jonteriya has prior experience with the Alachua County School Board as well as the University of Florida. She plans in the near future to form an organization to assist underprivilege young women throughout Alachua county. She has a passion to serve, educate, and empower her community.
Daniel Stewart is a Nationally Registered and State licensed Dietitian. He graduated with his undergraduate degree in Food Science and Human Nutrition in 2000 from the University of Florida, completing his clinical internship with the State of Florida in 2001. He currently holds a certificate specialization in Pediatric and Adolescent Obesity. His clinical interests include Pediatric nutrition and inflammatory bowel disease, Non-alcoholic Fatty Liver Disease, Nutrition and Allergies, and Conditions resulting in growth failure.
Dr. Angelina Bernier is a pediatric endocrinologist at the University of Florida. The daughter of a Cuban refugee, she grew up in Florida and completed her education at the University of Florida for college, medical school, residency and fellowship. Her first faculty position was at Boston University with a staff position at Joslin Diabetes Center. She worked as the Medical Director of the Barton Diabetes camp before moving back to Florida in 2015.
Dr Bernier is the Pediatric Medical Advisor for the UF Health Bariatric Surgery Center, Member of the UF Diabetes Institute and Program Director of the Pediatric Endocrine Fellowship.
Dr. Bernier Languages: English, Spanish
Through these workshops, we empower patients and families with the knowledge needed to be their own best advocates, spread awareness about Duchenne in the medical field, and help accelerate research and development.
During these workshops, you’ll hear from Duchenne clinicians, pharmaceutical companies in the Duchenne space, and local experts on topics like clinical trials, standard of care, physical therapy, adaptive sports, and much more. You’ll also learn about helpful resources and our direct service programs such as Camp Promise, Jett Giving Fund, and Community Ambassadors.
For the safety and wellbeing of our community amid the COVID-19 outbreak, we began holding our educational programming virtually.
As we bring back our in-person workshops, we will also continue to host webinars virtually in order to reach more families across the world. Check out our upcoming webinars or previous recordings below!
Thank you to our generous sponsors for making our educational programming possible!