Adams Family

Fundraising for an Accessible Van

The Adams are a family of four living in Colony, Kansas, with a baby on the way. Ethan Adams (11), was diagnosed with Duchenne muscular dystrophy at six years old. He lives with his parents, Alisha and Mitchell, and sister, Elaine (7).

Duchenne is a progressive neuromuscular disorder that causes a loss of motor, pulmonary, and cardiac function. Ethan’s parents struggle everyday to lift and transport him for school, appointments, and other activities. 

Alisha says, “Ethan can’t go to school with his power chair because our vehicle cannot transport it. We have to lift him into the car and back out of it just to go anywhere. This can be upwards of four or five times per day and is not very safe for us.”

As participants in Jett Foundation’s Accessible Vehicle Fund branch of the Jett Giving Fund, the Adams Family will aim to raise half the funds needed or more for their accessible vehicle before Jett Foundation steps in to cover the remaining costs and purchase the vehicle outright.

“To have an accessible vehicle means that Ethan can be independent again,” says Alisha. “We can’t wait for the day that he can safely roll out of our vehicle by himself.”

Ethan and his family enjoy playing video games together and exploring the outdoors. A safe and accessible vehicle gives them the opportunity to camp, fish, and adventure together as a family once again.

Help Ethan attain freedom and independence! Please consider donating to the family’s Jett Giving Fund fundraiser today.

All donations to Jett Foundation are tax-deductible to the extent allowed under applicable law and is an unrestricted contribution to the Jett Giving Fund. The family is working to raise half the funds needed for their van or more; when they reach their goal, Jett Foundation will cover the remaining costs and coordinate purchase and delivery of the vehicle. Please note that your contribution will be combined with other Jett Giving Fund donations to ensure that each of the children in the Jett Giving Fund initiative benefit from your generosity.


About Jett Giving Fund’s Accessible Vehicle Fund

Jett Giving Fund is Jett Foundation’s financial assistance program for families impacted by Duchenne muscular dystrophy who are in need of accessible vehicles or emergency support. As part of the Accessible Vehicle Fund, families fundraise half the funds needed or more for an accessible vehicle, and Jett Foundation covers the remaining costs once they reach their goal. 

If other resources have already been used to meet a specific need, if there is no longer a specific need, and/or if donations have been received in excess of a specific need, donations made in furtherance of a specific need will be applied for general purposes of the Jett Giving Fund. If the Jett Giving Fund no longer exists, all donations will be applied to further the general charitable mission of Jett Foundation.

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

Accessible Vehicle Fund Applications Open