Thriving With Duchenne Episode with Two Disabled Dudes Podcast
A Rare Disease Day podcast recording from the Two Disabled Dudes, Kyle Bryant and Sean Baumstark, who moderated Jett Foundation’s 2024 Rare Disease Day event.
Overjoyed About Accessibility
Overjoyed is a new way to create and play digitally turning small mouse movements into key presses and other actions, allowing even people with low to no dexterity or movement to control their computer.
PPMD’s Gene Therapy Hub
Gene therapy has made significant strides in Duchenne muscular dystrophy, with one therapy approved and other potential therapies in various stages of development. PPMD’s resources aim to empower and inform families like yours, providing insights and guidance to help you better understand the dynamic landscape of gene therapy.
Six Core Elements of HealthCare Transition: Integrating Young Adults into Adult Health Care
Got Transition dives deep into how to best transition young adults into adult health care.
Six Core Elements of HealthCare Transition: Transitioning to an Adult Approach to Health Care Without Changing Clinicians
Curious about transition of health care when clinicians aren’t being changed? Got Transition provides a package and explanations for the best approach.
Health Care Transition Quiz for Youth and Young Adults
Are you ready to transition to adult health care? Take this Got Transition quiz for help on what works best for you and your timeline.
Health Care Transition Quiz for Parents and Caregivers
Is your child ready to transition to adult health care? Take this Got Transition quiz for guidance on your family’s transition period.
Duchenne and Rare Disease Books
Books written about Duchenne and rare diseases for parents, individuals, and children.
CureDuchenne’s DME Guide
This Durable Medical Equipment (DME)Guide has been developed by CureDuchenne to provide families and caregivers with a comprehensive resource of beneficial equipment.
A Guide for Families by PPMD
Tools for Duchenne on steroids, cardiac, different family members/caregivers, and more.
ASGCT Gene Therapy 101
This Gene Therapy Basics webpage from the American Society of Gene + Cell Therapy helps with understanding genes through descriptions, visuals, and videos.
Classroom Resources by PPMD
A school Duchenne kit that includes materials on a diagnosis, care, IEPs, 504 Plans, and more.
State-Specific Resources by PPMD
Helpful topics and Duchenne help, categorized by each of the 50 U.S. States.
