Rethinking Exercise in Duchenne Muscular Dystrophy: What New PT/OT Research Means for Families
CureDuchenne shares guidance, research, and resources surrounding “What New PT/OT Research Means for Families”
CureDuchenne Caregiver Course
The CureDuchenne Caregiver Course is a free virtual resource for use by all who are affected by Duchenne and Becker muscular dystrophy and those who care for them. The following Chapters are chosen to help you navigate the newly diagnosed stage and to teach you about the options in care including the standards of care.
Overjoyed for Inclusion
Led by Jett Foundation Community Ambassador Anthony DeVergillo, the Overjoyed For Inclusion program combines technology and social fun with inclusion projects spanning video game accessibility, virtual events, music, cooking, and more. This initiative is powered by, and inspired by, the Overjoyed Accessible Gaming software: a free Microsoft Store app helping everyone play video games using any way they move their mouse cursor and click!
The PERFECT LIFT
The PERFECT LIFT is a revolutionary, lightweight, and portable solution designed for everyone—from firefighters, EMS crews, and doctors to caregivers, teachers, event staff, coaches, and families. Whether you’re responding to an emergency or simply helping someone who’s fallen, this tool empowers 2 to 6 people to safely lift and transport individuals with ease and confidence.
Accessible Van Giveaway – Muscular Dystrophy Family Foundation
The application is open from December 1st, 2025 to February 15th, 2026. Applicants must meet eligibility criteria found on their website.
Wheelchairs 4 Kids Programs
Wheelchairs 4 Kids recently launched two new programs to further support the incredible children and families they serve: Tuition Scholarship Program This initiative is designed to help our Wheel Kids take the next step in their educational journey. It’s open to children between the ages of17 and 21who have received assistance through our Let’s Roll program and […]
Care for Skin from PPMD
Parent Project Muscular Dystrophy provides skin care guidelines for individuals living with Duchenne and Becker muscular dystrophy.
Community Webinar: Myths Around IEPs and 504 Plans
Jett Foundation’s Community Webinar: Myths Around IEPs and 504 Plans
Community Webinar: School Accessibility and Participation in Duchenne Muscular Dystrophy
Jett Foundation’s Community Webinar: School Accessibility and Participation in Duchenne Muscular Dystrophy
School Resources from Parent Project Muscular Dystrophy
PPMD wants to make sure that families within the Duchenne and Becker community have the necessary tools to ensure a successful school year. Navigating care for your child is hard enough, let alone trying to understand IEPs (individualized education programs) vs. 504 plans, classroom accommodations, activity limitations, and what information to provide to school staff about your child’s medical care. So in order to help, consider the following your Duchenne and Becker School Survival Kit!
Communication Tips for Parents
A guide from CureDuchenne on communication tips parents can use while navigating a rare diagnosis.
Navigating School
From CureDuchenne: adapting education, energy conservation in school, routines, accommodations, and more.
Individual Education Plan Examples
Blinded examples from the Duchenne community on how an Individual Education Plan could look for you or your child.