Physical Therapy for Families & Caregivers by CureDuchenne
A guide and benefits to physical and occupational therapy for families impacted by Duchenne.
The Red Balloon
The Red Balloon is a classroom activity that helps students learn about Duchenne and reflect on what the meaning of strength.
Tools for School Kit
Print this packet to bring to your child’s teacher to help them better understand Duchenne and your child’s needs in the classroom setting.
Family Support Letters
Letters from families to families offering support, encouragement, and advice for navigating a Duchenne journey.
State-Specific Resource Guide
A dynamic list of resources and tools for the Duchenne community, broken down by state.
PPMD: Duchenne 101
An overview of Duchenne, its genetic causes, progression, types of mutations, and more.
MDA Care Center Network
Click to visit a list of Muscular Dystrophy Association’s care center locations in the United States. The MDA Care Center Network offers tens of thousands of appointments each year for individuals living with muscular dystrophy, ALS, and other neuromuscular diseases to access expert multidisciplinary care, clinical trials, and to connect with MDA and the neuromuscular community.
PPMD Certified Duchenne Care Centers
Consider visiting a Certified Duchenne Care Center. If you are not receiving care from one of these medical institutions, please make sure to bring the Duchenne Care Guidelines to your current physician. PPMD’s Certified Duchenne Care Center Program helps to ensure that centers comply with the standards of care and services that have been established in the Duchenne Care Guidelines.
DMD & the Heart
The heart is a muscle, too! This article, written by Dr. Chet Villa–a pediatric cardiologist at Cincinnati Children’s–discusses cardiac issues and care in Duchenne.
Health Insurance Flight Plan
A guide to navigating the insurance process in Duchenne. This booklet will teach you the basics about insurance, including claims and denials.
Clinical Trial Flight Plan
This booklet guide will walk you through the basic steps of participating in a trial, key glossary terms, where to find clinical trials, and more.
Social Security Overview
This Jett Foundation blog post features helpful resources and links for navigating the Social Security programs our government provides.
Dan and DMD Book
While telling a child about a rare disease is never easy, we hope that our free resource, Dan and DMD, will help parents and guardians as they prepare to talk to their children about Duchenne.
