Rethinking Exercise in Duchenne Muscular Dystrophy: What New PT/OT Research Means for Families
CureDuchenne shares guidance, research, and resources surrounding “What New PT/OT Research Means for Families”
Overjoyed for Inclusion
Led by Jett Foundation Community Ambassador Anthony DeVergillo, the Overjoyed For Inclusion program combines technology and social fun with inclusion projects spanning video game accessibility, virtual events, music, cooking, and more. This initiative is powered by, and inspired by, the Overjoyed Accessible Gaming software: a free Microsoft Store app helping everyone play video games using any way they move their mouse cursor and click!
The PERFECT LIFT
The PERFECT LIFT is a revolutionary, lightweight, and portable solution designed for everyone—from firefighters, EMS crews, and doctors to caregivers, teachers, event staff, coaches, and families. Whether you’re responding to an emergency or simply helping someone who’s fallen, this tool empowers 2 to 6 people to safely lift and transport individuals with ease and confidence.
Accessible Van Giveaway – Muscular Dystrophy Family Foundation
The application is open from December 1st, 2025 to February 15th, 2026. Applicants must meet eligibility criteria found on their website.
Wheelchairs 4 Kids Programs
Wheelchairs 4 Kids recently launched two new programs to further support the incredible children and families they serve: Tuition Scholarship Program This initiative is designed to help our Wheel Kids take the next step in their educational journey. It’s open to children between the ages of17 and 21who have received assistance through our Let’s Roll program and […]
Care for Skin from PPMD
Parent Project Muscular Dystrophy provides skin care guidelines for individuals living with Duchenne and Becker muscular dystrophy.
Individual Education Plan Examples
Blinded examples from the Duchenne community on how an Individual Education Plan could look for you or your child.
Healthcare Transition Timeline for Youth and Young Adults (Spanish)
Cronología para la transición de los servicios médicos para adolescentes y jóvenes adultos .
MDA Transition Guide: Pediatric to Adult Care
A road map for youth with neuromuscular disease and their caregivers.
PPMD’s Transition Toolkit for Duchenne Muscular Dystrophy
Supplemental materials provided by PPMD for transitions of care with Duchenne muscular dystrophy.
Emergency Care Considerations
Contact information, considerations, recommendations, and more about emergency care from Parent Project Muscular Dystrophy.
Fat Embolism Syndrome
An overview and important information on Fat Embolism Syndrome provided by Parent Project Muscular Dystrophy.
How Palliative Care Could Address Unmet Needs of Patients With Rare Diseases
Hospice News shares how palliative approaches can help address gaps of care among patients with a diverse range of rare chronic and serious illnesses.