MDA Care Center Network
Click to visit a list of Muscular Dystrophy Association’s care center locations in the United States. The MDA Care Center Network offers tens of thousands of appointments each year for individuals living with muscular dystrophy, ALS, and other neuromuscular diseases to access expert multidisciplinary care, clinical trials, and to connect with MDA and the neuromuscular community.
PPMD Certified Duchenne Care Centers
Consider visiting a Certified Duchenne Care Center. If you are not receiving care from one of these medical institutions, please make sure to bring the Duchenne Care Guidelines to your current physician. PPMD’s Certified Duchenne Care Center Program helps to ensure that centers comply with the standards of care and services that have been established in the Duchenne Care Guidelines.
DMD & the Heart
The heart is a muscle, too! This article, written by Dr. Chet Villa–a pediatric cardiologist at Cincinnati Children’s–discusses cardiac issues and care in Duchenne.
Health Insurance Flight Plan
A guide to navigating the insurance process in Duchenne. This booklet will teach you the basics about insurance, including claims and denials.
Clinical Trial Flight Plan
This booklet guide will walk you through the basic steps of participating in a trial, key glossary terms, where to find clinical trials, and more.
Social Security Overview
This Jett Foundation blog post features helpful resources and links for navigating the Social Security programs our government provides.
Dan and DMD Book
While telling a child about a rare disease is never easy, we hope that our free resource, Dan and DMD, will help parents and guardians as they prepare to talk to their children about Duchenne.
Health Care Transition Timeline for Youth and Young Adults
A proposed health care transition timeline from Got Transition for individuals aged 12-25.
State by State Resource Guide
This tool serves as a dynamic list of resources and tools for the Duchenne community, broken down by state.
Jett Foundation’s Brochure
Jett programs overview, information on Duchenne, our impact, and more.
Tips for Finding Your Perfect Accessible Vehicle
A step-by-step guide from Jett Foundation offering tips and instructions on navigating a search for safe and accessible vehicles.
Duchenne Family Assistance Program – (Online Application)
Team Joseph and Little Hercules Foundation offer assistance to families impacted by Duchenne such as accessible vehicle assistance (and modifications), educational resources, emergency support, accessibility equipment, insurance information, home modifications, travel assistance, and more.
Jett Giving Fund Media Guide
Your toolkit for spreading the word in your local community!