Physicians Who Treat Female Carriers of Duchenne
A resource list of known physicians in the United States who treat and care for female carriers of Duchenne muscular dystrophy.
Duchenne Muscular Dystrophy Diagnosis and Care
PediaLink provides a course highlighting the specialty care and emerging therapies related to the care and management of DMD as well as the common issues affecting children with DMD and the significant role that pediatricians, other physicians, and non-physician clinicians have in caring for patients with DMD.
DMD Webinar Series from American Academy of Pediatrics
Through this webinar series, clinicians will be better informed about care consideration and emerging therapies related to the care and management of individuals with DMD
Overjoyed About Accessibility
Overjoyed is a new way to create and play digitally turning small mouse movements into key presses and other actions, allowing even people with low to no dexterity or movement to control their computer.
PPMD’s Gene Therapy Hub
Gene therapy has made significant strides in Duchenne muscular dystrophy, with one therapy approved and other potential therapies in various stages of development. PPMD’s resources aim to empower and inform families like yours, providing insights and guidance to help you better understand the dynamic landscape of gene therapy.
Six Core Elements of HealthCare Transition: Integrating Young Adults into Adult Health Care
Got Transition dives deep into how to best transition young adults into adult health care.
Six Core Elements of HealthCare Transition: Transitioning to an Adult Approach to Health Care Without Changing Clinicians
Curious about transition of health care when clinicians aren’t being changed? Got Transition provides a package and explanations for the best approach.
Six Core Elements of HealthCare Transition: Transitioning Youth to an Adult Health Care Clinician
Got Transition packages and tips for Internal Medicine, Family Medicine, and Med-Peds Clinicians on transitioning children and young adults to adult clinicians.
Health Care Transition Quiz for Youth and Young Adults
Are you ready to transition to adult health care? Take this Got Transition quiz for help on what works best for you and your timeline.
Health Care Transition Quiz for Parents and Caregivers
Is your child ready to transition to adult health care? Take this Got Transition quiz for guidance on your family’s transition period.
Duchenne and Rare Disease Books
Books written about Duchenne and rare diseases for parents, individuals, and children.
CureDuchenne’s DME Guide
This Durable Medical Equipment (DME)Guide has been developed by CureDuchenne to provide families and caregivers with a comprehensive resource of beneficial equipment.
A Guide for Families by PPMD
Tools for Duchenne on steroids, cardiac, different family members/caregivers, and more.
