WORLD DUCHENNE AWARENESS DAY CAMBRIDGE
THURSDAY, SEPTEMBER 7, 2018
Jett Foundation hosts this annual event of celebration and remembrance in Cambridge, MA, the epicenter for rare disease research. In recognition of this annual worldwide day dedicated to Duchenne muscular dystrophy, we bring local patients and families, Duchenne experts, and industry partners together under one roof to celebrate advances made in Duchenne research, and to acknowledge the challenges still to come.
The common theme of World Duchenne Awareness Day is red, because red is the global color for stop, and Jett Foundation, and the rest of the Duchenne community are determined to STOP Duchenne in it's tracks. In honor of World Duchenne Awareness Day and the families and individuals affected by the disease, bridges, buildings, and other landmarks around Boston will light up red, bringing awareness and hope for a cure to Massachusetts, the international capital for biomedical innovation.
World Duchenne Awareness Day Cambridge is free of cost for families affected by Duchenne, as well as healthcare providers and academics.