World Duchenne Awareness Day

Activities on September 6 & 7

Every year on September 7th, the global community acknowledges World Duchenne Awareness Day. This year, Jett Foundation is honoring the day with an in-person WDAD event on Saturday, September 6th, 2025 and a virtual component with Awareness Boxes on Sunday, September 7th, 2025.

About WDAD

In honor of this annual worldwide day dedicated to Duchenne muscular dystrophy, we bring individuals and families, Duchenne experts, and industry partners together to recognize different aspects of Duchenne life, acknowledge the challenges still to come, and show that we are Stronger than Duchenne. 

In 2025, we will host both in-person and virtual events for World Duchenne Awareness Day. We are excited to connect with you this September!

Virtual Activities: Shirts, Awareness Boxes & More

Virtual Activities

Awareness Boxes and t-shirts are SOLD OUT. Don't forget to register for the premiere of our "Family: The Heart of Care" video that will be launched on September 7th!
SOLD OUT

In-Person Luncheon

September 6 | 11:00AM ET | Quincy, MA

In-Person Luncheon

Register to join us for our luncheon in Quincy!
Registration Closed

2025 Shirt Design

This year’s World Duchenne Awareness Day t-shirt proudly embodies the World Duchenne Organization’s powerful global theme: “Family: the heart of care.” The design visually represents this by featuring intertwining hearts and a strand of DNA. This imagery beautifully symbolizes the unwavering support, love, and central role families play in nurturing and advocating for loved ones living with Duchenne, truly being the heart of the care journey for many. 

2025 Awareness Boxes

Our WDAD Awareness Boxes contain items to aid in your awareness activities, show your Jett swag, and participate from home. We encourage you to snap pictures using these items, tag @JettFoundation on social media, and spread Duchenne awareness anywhere you can!

Boxes are currently SOLD OUT, but shirts are still available to order.

Awareness & Social Toolkit

2025 WDAD Sponsors

To learn more about WDAD sponsorship opportunities, please email [email protected] or view our Sponsorship Packet.

Thank you to our Advocacy Sponsors:

Experience the magic this summer!

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

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