World Duchenne Awareness Day Cambridge
Thursday, September 7, 2017
Royal soneseta cambridge
Join Jett Foundation as we host this annual event of celebration and remembrance in Cambridge, MA, the epicenter for rare disease research. In recognition of this annual worldwide day dedicated to Duchenne muscular dystrophy, we bring local patients and families, Duchenne experts, and industry partners together under one roof to celebrate advances made in Duchenne research, and to acknowledge the challenges still to come.
The celebration begins at 6:30 with appetizers and cocktails, followed by a short speaking program and a group photo outside along The Esplanade. Bridges, buildings, and other landmarks around the city of Boston will light up red in honor of the day, and the families and individuals affected by Duchenne.
World Duchenne Awareness Day Cambridge is free of cost for families affected by Duchenne, as well as healthcare providers and academics.
Registration for will open Monday, July 9th. Space is limited.