WORLD DUCHENNE AWARENESS DAY Cambridge
Friday, SEPTEMBER 7, 2018
Kimpton Hotel Marlowe Cambridge
6:00 – 9:00 PM
Jett Foundation hosts this annual event of celebration and remembrance in Cambridge, MA, the epicenter for rare disease research. In recognition of this annual worldwide day dedicated to Duchenne muscular dystrophy, we bring local patients and families, Duchenne experts, and industry partners together under one roof to celebrate advances made in Duchenne research, and to acknowledge the challenges still to come.
This year's WDAD theme is Standards of Care. Excellent care begins with education and continues with a commitment to ensuring access to care is guaranteed and research is supported.
We are excited to share that Dr. Brenda Wong from the new Duchenne Program at University of Massachusetts Medical will be joining us for the evening as an honored guest. We look forward to welcoming her to our New England Duchenne community!
World Duchenne Awareness Day Cambridge is free of cost for families affected by Duchenne, as well as healthcare providers and academics.
Schedule of Events
Welcome & Fun Family Activities
6:00 to 7:00 p.m.
Short Speaking Program
7:00 to 7:45 p.m.
Christine McSherry, founder and President of Jett Foundation
Alan Chaulet, vice president of All Wheels Up and DMD patient
Jillian Moore, Aiden’s mom, sharing a parent’s perspective
7:45 to 9:00 p.m.
Music by MinaMaze, a two-man American indie/folk band
featuring percussionist Sam Safford, a 20-year-old DMD patient
Ticket prices include a 2018 World Duchenne Awareness Day shirt.
2018 World Duchenne Awareness Day Shirts
Can't make it to the event? With a $25 donation, you can receive one of our 2018 WDAD shirts to celebrate in your own community on September 7.