World Duchenne Awareness Day

Saturday, September 7, 2024

For the past eight years, Jett Foundation has hosted this annual event of celebration and remembrance of our Duchenne community. We look forward to our 9th annual WDAD on September 7, 2024, when we will connect with our community throughout the day.

About WDAD

In honor of this annual worldwide day dedicated to Duchenne muscular dystrophy, we bring individuals and families, Duchenne experts, and industry partners together to recognize different aspects of Duchenne life, acknowledge the challenges still to come, and show that we are Stronger than Duchenne. 

In the past, we’ve hosted in-person events in the Boston area or virtual events. This year, we’re excited to do both! This will allow us to spread awareness about Duchenne further across the country and even internationally.

2024 Shirt Design

This year’s World Duchenne Awareness Day shirts feature a spin on Jett’s classic “Stronger than Duchenne” tee and a quote from disability rights activist, Judy Heumann. The quote reads “disability only becomes a tragedy when society fails to provide the things we need to lead our lives.”

Schedule of Events

September 7, 2024

Virtual Kick-Off Video

8:00AM ET

Tune in for a special message from our Executive Director, Eric Snyder.

In-Person Luncheon

11:30AM-1:30PM ET

Marriott Boston Quincy, 1000 Marriott Dr, Quincy, MA 02169

Family-friendly luncheon with keynote speaker and fun family activities!

Virtual Panel Discussion

5:00PM ET | Via Zoom

Join us for a panel discussion featuring members of our community surrounding this year's theme: Raise Your Voice for Duchenne.

Awareness & Social Toolkit

2024 WDAD Sponsors

To learn more about WDAD sponsorship opportunities, please email [email protected] or view our Sponsorship Packet.

Thank you to our Advocacy Sponsors:

Experience the magic this summer!

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

Accessible Vehicle Fund Applications Open