Jett Foundation

Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.

Family

Everyday, we strive to provide our community with helpful resources, interactive programs, and tools to use on a Duchenne journey.

Donate

Thanks to the unwavering support of community members like you, Jett Foundation has been able to continue serving our Duchenne muscular dystrophy community in creative and safe for many years.

Volunteer

Make a difference in the lives of those living with Duchenne and become one of the many who selflessly give their time and talent to support our mission.

Become a Partner

Our team at Jett Foundation will work with you and your company to customize a partnership. Let us explore with you how, together, we can serve a community full of unmet needs.

Featured Programs

Jett Giving Fund

Jett Giving Fund offers families assistance through two main branches of support: the Accessible Vehicle Fund helps families obtain safe, accessible transportation; the Emergency Fund provides grants to families facing unexpected, emergency situations.

Camp Promise

Camp Promise is a free, week-long camp and year-round program for kids, teens, and adults with neuromuscular disorders.

Family Workshops

Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year.

Support Groups

Our support program focuses on building stronger support systems for families affected by Duchenne in their local community through story-telling, education, and grief-management.

Upcoming Events

Event Date: July 18, 2024
Tune in to hear from Jonathon Soslow on cardiac imaging, treatment, and therapy for individuals living with DMD, BMD, or are carriers.
Event Date: July 19, 2024
Jett Foundation’s virtual support group for parents, family members or caregivers of females who have been diagnosed with Duchenne or are symptomatic carriers.

Duchenne News

June 24, 2024
DUVYZAT is a prescription medicine that is used for the treatment of Duchenne muscular dystrophy in people 6 years of age and older.
June 24, 2024
REGENXBIO shares a press release detailing updates on its Phase I/II AFFINITY DUCHENNE® trial.

Recent Blog Posts

June 20, 2024
Camp Promise Connect brings together campers from across the country in a virtual setting to experience fun activities, “firsts,” and so much more.
June 14, 2024
The Petz family’s van opens opportunities for family trips, safe everyday travels, and countless memories.

Donate Today

Help us fulfill our mission by donating to help us partner with individuals and families through empowering educational programming, transformational direct service experiences, and by accelerating development of life-changing treatments.

Experience the magic this summer!

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

Accessible Vehicle Fund Applications Open