Jett Foundation

Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.

Family

Everyday, we strive to provide our community with helpful resources, interactive programs, and tools to use on a Duchenne journey.

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Donate

Thanks to the unwavering support of community members like you, Jett Foundation has been able to continue serving our Duchenne muscular dystrophy community in creative and safe for many years.

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Volunteer

Make a difference in the lives of those living with Duchenne and become one of the many who selflessly give their time and talent to support our mission.

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Become a Partner

Our team at Jett Foundation will work with you and your company to customize a partnership. Let us explore with you how, together, we can serve a community full of unmet needs.

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Featured Programs

Jett Giving Fund

Jett Giving Fund offers families assistance through two main branches of support: the Accessible Vehicle Fund helps families obtain safe, accessible transportation; the Emergency Fund provides grants to families facing unexpected, emergency situations.

Camp Promise

Camp Promise is a free, week-long camp and year-round program for kids, teens, and adults with neuromuscular disorders.

Family Workshops

Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year.

Support Groups

Our support program focuses on building stronger support systems for families affected by Duchenne in their local community through story-telling, education, and grief-management.

Upcoming Events

Event Date: April 3, 2023

Porch Nite: Comfort and Pain Management in Duchenne

Join fellow moms at Porch Nite to discuss how to provide comfort and pain management to individuals with Duchenne muscular dystrophy

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Event Date: April 5, 2023

Myths Around IEPs and 504 Plans

A Community Webinar hosted by Jett Foundation and Jill Castle on myths around IEPs and 504 plans.

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Event Date: April 15, 2023

Family Workshop: Gainesville, FL

Join us in Gainesville, FL for our first Family Workshop of 2023!

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Duchenne News

March 23, 2023

Solid Biosciences Provides Fourth Quarter and Full-Year 2022 Business Update and Financial Results

March 23, 2023

Dyne Therapeutics Receives FDA Orphan Drug and Rare Pediatric Designations for DYNE-251 for the Treatment of Duchenne

March 17, 2023

Sarepta Therapeutics Announces Advisory Committee Meeting Will Be Held for SRP-9001

Sarepta announces advisory meeting for SRP-9001, an investigational gene therapy for the treatment of Duchenne muscular dystrophy.

Recent Blog Posts

March 6, 2023

Jett Foundation Celebrates 6th Annual Rare Disease Day

Jett Foundation’s Thriving with Duchenne Rare Disease Day event focused on anxiety and mental health

February 28, 2023

Special Delivery: Jett Foundation Helps Jacobus Family Receive Safe and Accessible Van

The Jacobus Family receives a safe and accessible vehicle through Jett Giving Fund

February 27, 2023

Moms Unite In-Person at Princeton, NJ Porch Nite Retreat

Moms reunite at Princeton, NJ Porch Nite

Donate Today

Help us fulfill our mission by donating to help us partner with individuals and families through empowering educational programming, transformational direct service experiences, and by accelerating development of life-changing treatments.