Jett Foundation

Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.

Family

Everyday, we strive to provide our community with helpful resources, interactive programs, and tools to use on a Duchenne journey.

Donate

Thanks to the unwavering support of community members like you, Jett Foundation has been able to continue serving our Duchenne muscular dystrophy community in creative and safe for many years.

Volunteer

Make a difference in the lives of those living with Duchenne and become one of the many who selflessly give their time and talent to support our mission.

Become a Partner

Our team at Jett Foundation will work with you and your company to customize a partnership. Let us explore with you how, together, we can serve a community full of unmet needs.

Featured Programs

Jett Giving Fund

Jett Giving Fund was established in 2017 to assist families impacted by Duchenne muscular dystrophy in purchasing unaffordable, but vital medical and accessibility equipment.

Camp Promise

Camp Promise is a free, week-long camp and year-round program for kids, teens, and adults with neuromuscular disorders.

Family Workshops

Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year.

Support Groups

Our support program focuses on building stronger support systems for families affected by Duchenne in their local community through story-telling, education, and grief-management.

Upcoming Events

Community Webinar Series: What to Consider for Higher Education

Wednesday, July 20, 2022

1:00 PM – 2:00 PM EST

Jett Foundation’s Community Webinar Series is focused on ensuring that our Duchenne community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey. 

Duchenne News

August 11, 2022
On August 10, 2022, Dyne Therapeutics announced the publication of Duchenne muscular dystrophy preclinical data: Enhanced Exon Skipping and Prolonged Dystrophin Restoration Achieved by TfR1-Targeted Delivery of Antisense Oligonucleotide Using FORCE Conjugation in Mdx Mice.
August 1, 2022
On July 29, 2022, Sarepta Therapeutics shared news regarding SRP-9001.
July 14, 2022
On July 12, 2022, Edgewise Therapeutics shared a press release announcing the opening of the CANYON Phase 2 clinical trial of their investigational compound, EDG-5506, in individuals with Becker muscular dystrophy.

Recent Blog Posts

August 16, 2022
On July 30, 2022, the Hains family led a one-day JettRide in their hometown of Lebanon, Pennsylvania! Luke and Lance Hains have been Jett Riders for the past five years to honor their little brother Levi, who lives with Duchenne muscular dystrophy. 
August 5, 2022
Camp Promise Rockies was a major success! 2022 brought loads of excitement and more as we reunited with our Rockies family for the first time since 2019.
July 26, 2022
“We moved to Colorado four months ago because my husband got a job with housing on a ranch. Then we were told the ranch was being sold, and we had only a few days days to move,” says Gail Neal.

Donate Today

Help us fulfill our mission by donating to help us partner with individuals and families through empowering educational programming, transformational direct service experiences, and by accelerating development of life-changing treatments.