Jett Foundation

Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.

Family

Everyday, we strive to provide our community with helpful resources, interactive programs, and tools to use on a Duchenne journey.

Donate

Thanks to the unwavering support of community members like you, Jett Foundation has been able to continue serving our Duchenne muscular dystrophy community in creative and safe for many years.

Volunteer

Make a difference in the lives of those living with Duchenne and become one of the many who selflessly give their time and talent to support our mission.

Become a Partner

Our team at Jett Foundation will work with you and your company to customize a partnership. Let us explore with you how, together, we can serve a community full of unmet needs.

Featured Programs

Jett Giving Fund

Jett Giving Fund offers families assistance through two main branches of support: the Accessible Vehicle Fund helps families obtain safe, accessible transportation; the Emergency Fund provides grants to families facing unexpected, emergency situations.

Camp Promise

Camp Promise is a free, week-long camp and year-round program for kids, teens, and adults with neuromuscular disorders.

Family Workshops

Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year.

Support Groups

Our support program focuses on building stronger support systems for families affected by Duchenne in their local community through story-telling, education, and grief-management.

Upcoming Events

Event Date: April 15, 2024
A Family Support Group for moms in the Duchenne community to connect, form relationships, share knowledge, and more.
Event Date: April 18, 2024
Tune in to hear from Larry Wayne Markham on the management and access to care for female carriers of Duchenne muscular dystrophy.
Event Date: April 20, 2024
A Jett Foundation support group for females diagnosed with Duchenne muscular dystrophy.

Duchenne News

April 1, 2024
Pfizer launches Duchenne caregiver education website.
March 19, 2024
PTC plans to re-submit an NDA for Translarna™ for the treatment of nonsense mutation Duchenne muscular dystrophy.

Recent Blog Posts

March 20, 2024
The Partin-Rockwood Family has three boys living with Duchenne and autism who are excited for new adventures.
March 13, 2024
Ellis Bautista and his family celebrate the arrival of safe and accessible transportation.

Donate Today

Help us fulfill our mission by donating to help us partner with individuals and families through empowering educational programming, transformational direct service experiences, and by accelerating development of life-changing treatments.

Experience the magic this summer!

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

Accessible Vehicle Fund Applications Open