Jett Foundation

Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.


Everyday, we strive to provide our community with helpful resources, interactive programs, and tools to use on a Duchenne journey.


Thanks to the unwavering support of community members like you, Jett Foundation has been able to continue serving our Duchenne muscular dystrophy community in creative and safe for many years.


Make a difference in the lives of those living with Duchenne and become one of the many who selflessly give their time and talent to support our mission.

Become a Partner

Our team at Jett Foundation will work with you and your company to customize a partnership. Let us explore with you how, together, we can serve a community full of unmet needs.

Featured Programs

Jett Giving Fund

Jett Giving Fund was established in 2017 to assist families impacted by Duchenne muscular dystrophy in purchasing unaffordable, but vital medical and accessibility equipment.

Camp Promise

Camp Promise is a free, week-long camp and year-round program for kids, teens, and adults with neuromuscular disorders.

Family Workshops

Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year.

Support Groups

Our support program focuses on building stronger support systems for families affected by Duchenne in their local community through story-telling, education, and grief-management.

Upcoming Events

Porch Nite: Managing All Aspects of Siblings

Monday, September 26, 2022

7:00PM – 9:00PM ET

Join us for Porch Nite to discuss managing all aspects of siblings with fellow moms in the Duchenne space!

Duchenne News

September 13, 2022
On September 13, 2022, Sarepta Therapeutics shared an update announcing that their EMBARK (SRP-9001-301) study is fully enrolled.
September 12, 2022
On Sept. 12, 2022, Edgewise Therapeutics released positive 4-month interim data from their open label study in individuals with Becker muscular dystrophy.
September 7, 2022
On Sept. 7, 2022, Edgewise announced that the FDA has authorized its Phase 2 clinical trial for the treatment of Duchenne. They expect to begin dosing participants in the fourth quarter of 2022. 

Recent Blog Posts

September 21, 2022
Camp Promise wrapped up a summer full of on-the-ground magic with an exciting week in Brackney, Pennsylvania.
September 15, 2022
Sunday, September 11, 2022 marked the 14th year that Jett Foundation’s Gals for Cal team of women made their presence known in Hopkinton for the annual Title 9 Triathlon. Led by team captains Cindy Quitzau and Annie Ganot, the team fielded nearly 50 Gals at this year’s race.
September 14, 2022
On September 7, 2022, Jett Foundation hosted its seventh annual World Duchenne Awareness Day (WDAD) celebration to recognize those in the Duchenne community.

Donate Today

Help us fulfill our mission by donating to help us partner with individuals and families through empowering educational programming, transformational direct service experiences, and by accelerating development of life-changing treatments.