
Jett Foundation Hosts Eighth Annual World Duchenne Awareness Day Events
Panel discussions, accessible and adaptation demonstrations, a luminaria ceremony, and more!
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An opportunity to engage with speakers who host sessions covering topics like self-care, anxiety, grief, loss, and more.
Mental health issues impact everyone in our community; from parents and caregivers to individuals living with Duchenne as well as healthcare professionals and industry partners. We hope that every member of our Duchenne community will be able to benefit from the sessions and resources available through Jett’s Mental Health Resource Fair. Sessions are open to all, but we have indicated the types of audiences that each topic is tailored to help you navigate through the day and fine-tune your experience.
Reclaiming and Reimagining Self-Care
Desiree Rew, LCSW, AMFT
Audience: ALL
Navigating Anticipatory Grief
Kelsey Jager, Ph.D.
Audience: Caregivers, Parents, Grandparents, Step-Parents, Individuals
Navigating Grief Around Losses in your Life as a Parent/Caregiver
Lauren McVicker Fritz, MA, ATR-BC, LPC
Audience: Caregivers, Parents
General Mental Health Resources
Kelsey Jager, Ph.D.
Audience: ALL
Personal Experience, Navigating Your Mental Health and Resources
Joslyn Phelps, Jett Foundation Ambassador
Audience: ALL
Desiree Rew is a multifaceted individual passionate about social work, self-care, and community building. As a Licensed Clinical Social Worker and national speaker on self-care, she is committed to empowering individuals and communities to prioritize their well-being. In addition to her social work and self-care work, Desiree is also a freelance food and travel writer who enjoys exploring new cultures and cuisines, a workplace wellness trainer, and a community steward dedicated to positively impacting the lives of those around her. Desiree’s diverse interests and expertise reflect her deep commitment to making a difference in lives and communities.
Abby Brockman, MDiv, BCC is a board-certified clinical trauma chaplain. She received her Masters of Divinity from Boston University’s School of Theology, completed her clinical residency at the Seattle VA hospital, and worked as a staff chaplain for many years at Seattle Children’s Hospital on their Cancer Care, Pediatric Intensive Care, and In-patient Psychiatric Units. She specializes in trauma, grief and loss, and end-of-life work and recently started her own private practice. She’s also a long-time Camp Promise counselor and unit leader where she’s known for her relentless jokes, crazy ideas, and commitment to the amazing community. You can check out her daily writing on her LinkedIn profile @Abby Brockman.
Kelsey A. Jager is a Licensed Professional Clinical Counselor with Supervision designation. She earned her PhD in Counseling and Human Development Services from Kent State University in 2019. She has experience at the Cleveland Clinic Foundation, and Kent State University’s Counseling and Human Development. In addition to clinical practice, Kelsey has taught undergraduate and graduate-level courses at Kent State University and John Carroll University since 2011.
Kelsey works with a wide variety of mental and emotional disorders with individuals, couples and families. She provides services for bipolar, depressive, anxiety, obsessive compulsive, somatic and impulse control disorders. Her special interests include chronic disease management and disabilities.
Panel discussions, accessible and adaptation demonstrations, a luminaria ceremony, and more!
Jett Foundation’s Thriving with Duchenne Rare Disease Day event focused on anxiety and mental health
On September 7, 2022, Jett Foundation hosted its seventh annual World Duchenne Awareness Day (WDAD) celebration to recognize those in the Duchenne community.
On February 28, 2022, Jett Foundation hosted a virtual event to celebrate Rare Disease Day 2022. This was Jett Foundation’s 5th annual Rare Disease Day, which welcomed speakers from the Duchenne and rare disease communities in a panel discussion themed “Thriving with Duchenne.”
For the past several years, Jett Foundation has hosted an annual World Duchenne Awareness Day (WDAD) event of celebration and remembrance in the Boston area, the epicenter for rare disease research. Once again we were able to take the opportunity to broaden our celebration beyond our traditional Boston area event and engage with our families and partners all across the country virtually.
Jett Foundation, Inc.
65 Cordage Park Circle
Suite 130 | Plymouth, MA 02360
781-585-5566 | info@jettfoundation.org
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