An online-based awareness month centered around important mental health topics, voices from the Duchenne community, and weekly reflection.
Mental health issues impact everyone in our community; from parents and caregivers to individuals living with Duchenne as well as healthcare professionals and industry partners. We hope that every member of our community can benefit from the topics and resources available through Jett’s Mental Health Month posts and Resource Library. Conversations, resources, and reflections will be posted weekly on Jett’s social media platforms throughout the month of May.
Posted to the stories section of our Facebook and Instagram pages, look out for short clips from individuals, caregivers, siblings, and Duchenne community members during Mindful Mondays. (May 4, May 11, May 18, and May 25)
Head over to the main feed of our social media channels to hear conversations with Duchenne professionals, siblings, caregivers, and individuals living with Duchenne on wellness topics and tips as we roll through Mental Health Month. (May 6, May 13, May 20, and May 27)
Take a moment to reflect — What made you smile this week? How have you cared for yourself? How does kindness play a role in your life?
Utilize Jett Foundation’s posts and quotes published on Fridays throughout May to reflect on important topics for your day-to-day life. (May 8, May 15, May 22, May 29)
Over the weekend of September 6-7, 2025, Jett Foundation’s community came together both in-person and virtually for an unforgettable World Duchenne Awareness Day (WDAD) weekend
Panelists and moderators shared their experiences with adaptive living, encouraging others to be limitless with their interests.
Awareness boxes, in-person luncheon, virtual panel discussion, and so much more!
Individuals from the Duchenne and rare disease community shared on obtaining their license, experiencing great thrills, starting careers, and more.
Panel discussions, accessible and adaptation demonstrations, a luminaria ceremony, and more!
Jett Foundation’s Thriving with Duchenne Rare Disease Day event focused on anxiety and mental health
On September 7, 2022, Jett Foundation hosted its seventh annual World Duchenne Awareness Day (WDAD) celebration to recognize those in the Duchenne community.
On February 28, 2022, Jett Foundation hosted a virtual event to celebrate Rare Disease Day 2022. This was Jett Foundation’s 5th annual Rare Disease Day, which welcomed speakers from the Duchenne and rare disease communities in a panel discussion themed “Thriving with Duchenne.”
For the past several years, Jett Foundation has hosted an annual World Duchenne Awareness Day (WDAD) event of celebration and remembrance in the Boston area, the epicenter for rare disease research. Once again we were able to take the opportunity to broaden our celebration beyond our traditional Boston area event and engage with our families and partners all across the country virtually.
Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.
