NORWELL, MA – Jett Foundation, a leading non-profit dedicated to providing life-changing programs and resources for the Duchenne muscular dystrophy community, is proud to announce its 25th anniversary. Since its founding in 2001, the organization has evolved from a local grassroots effort into a national pillar of support, advocacy, and hope for thousands of families.
Founded by Christine McSherry after her son Jett was diagnosed with Duchenne, the foundation was born out of a desperate need for better treatments and a community that understood the unique challenges of the diagnosis. Over the past quarter-century, Jett Foundation has been at the forefront of major milestones, including playing a pivotal role in the FDA approval of the first-ever disease-modifying treatment for Duchenne in 2016.
“When we started 25 years ago, the landscape for Duchenne was very different,” says Eric Snyder, President and CEO of Jett Foundation. “Today, while we are still fighting for a cure, we have built a village that ensures no family has to navigate this path alone. Our 25th anniversary is a testament to the spirit of our families and the unwavering support of our partners.”
To commemorate this milestone, Jett Foundation will host its Silver Soirée gala on June 11, 2026, at Granite Links in Quincy, MA. The evening will honor the individuals and partners who have shaped the foundation’s history and look forward to a future of continued innovation in patient care.
Key achievements over 25 years:
- Jett Giving Fund: Gifting millions of dollars in accessible vehicles, medical equipment, and emergency financial assistance to families in need.
- Camp Promise: Providing a barrier-free, traditional summer camp experience for hundreds of individuals living with neuromuscular disorders each year.
- Patient Advocacy: Serving as a primary voice to accelerate the development of safe and effective new therapies.
- Community Support: Facilitating regional workshops, support groups, and educational webinars to empower caregivers and patients at every stage of the journey.
As Jett Foundation enters its next chapter, the focus remains steadfast: identifying the unmet needs of the community and working tirelessly to fill them.
“Twenty-five years is a long time, but for our families, every day counts,” says Snyder. “We invite our community, past and present, to join us this year as we celebrate how far we’ve come and commit to the work that remains.”
For more information about Jett Foundation’s 25th-anniversary events or to learn how to get involved, please visit jettfoundation.org.
About Jett Foundation
Since 2001, Jett Foundation has been dedicated to empowering people and families affected by Duchenne muscular dystrophy and other neuromuscular disorders. We provide comprehensive support through educational opportunities, transformative programming, and essential financial assistance for every stage of the Duchenne journey.
Media Contact: Gabriella Costa, Director of Marketing & Communications [email protected]
