On November 16, 2025, Sarepta Therapeutics Inc. shared a Community Letter with updates regarding the label for ELEVIDYS, Sarepta’s approved gene therapy for Duchenne muscular dystrophy.
To view Sarepta’s Community Letter, please click here.
- About Us
- Programs & Events
-
-
Programs
-
Events
-
-
-
-
- Resources
-
-
-
-
-
Welcome Packet
Been diagnosed or want to learn more?
Request a PacketAbout Duchenne
Facts, Treatment, and Care
Read MoreDuchenne News
The latest from our partners.
Read NowTransition Resources
GotTransition resources and tools.
Learn MoreCommunity Ambassadors
Meet our Community Ambassadors
Read NowClinical Trials
A quick look at investigational drug studies
Read MoreFemale Carriers
Resources, Care, and Programs
Learn MoreConnect with our Carrier Specialist
Get support and help navigating your journey
Meet TrinaCarrier Conversations
Join a carrier support group session.
Upcoming Events
-
-
-
-
-
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer TodayCommunity Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Team Jett
Activate your muscles at events to raise awareness and funds for the Duchenne community.
Join Team Jett
-
-
-
-
-
Become a Partner
Learn about creating a partnership and joining our community.
Get StartedHost a Webinar
Learn about our community webinar series.
View Upcoming WebinarsResource Library
Read about our resources for Partners.
Resources for Partners
-
-
-
-
-
How To Help
Make a difference in the lives of those living with Duchenne.
Get Started VolunteeringClinical Trials
A quick look at investigational drug studies.
Read More About Clinical TrialsDuchenne News
Stay up to date with the latest discoveries.
Read NowDan and DMD & Other Books
These books will help parents, guardians, and individuals as they navigate a Duchenne diagnosis and journey.
Read HereOur Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Download the Flight PlanResource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
-
-
-
- Blog
- Get Involved
- Donate
