Brumer Family

Raising Funds for an Accessible Van

Support the Brumer family with a donation today!

 

The Brumer Family lives in Florence, Kentucky, and is facing many challenges that come with a Duchenne muscular dystrophy diagnosis each day. Daniel Brumer (12) was diagnosed with Duchenne at six years old. Duchenne is a progressive neuromuscular disorder that causes a loss of motor, pulmonary, and cardiac function. Daniel lives with his grandmother, Denise, and their cat, Peaches.

Daniel loves video games, movies, and traveling with his grandmother, who has tried to find ways to give Daniel adventures ever since his diagnosis. “Since Daniel lost the ability to use his legs, I’ve had to lift him to get around, which progressively has gotten harder,” shares Denise. “Daniel has fallen to the ground while I try to manually lift him into our car. If we have an accessible van, he would be able to drive right in when it’s time to go anywhere.”

Daniel and Denise also have a hard time attending medical appointments, as they need a lot of help to travel with their current situation. Amidst many challenges and struggles, Denise says they heard about the Jett Giving Fund through a social worker at their hospital and other Duchenne organizations.

As participants in Jett Foundation’s Accessible Vehicle Fund branch of the Jett Giving Fund, the Brumer Family will aim to raise half or more of the funds needed for their accessible vehicle before Jett Foundation steps in to cover the remaining costs and purchase the vehicle outright.

 

“We’re looking forward to traveling to everyday activities together, going to the movies, and letting Daniel get into a vehicle by himself,” says Denise.

You can help Daniel attain the freedom and independence he deserves by contributing toward his fundraising goal below and sharing with your network of friends!

All donations to Jett Foundation are tax-deductible to the extent allowed under applicable law and is an unrestricted contribution to the Jett Giving Fund. The family is working to raise half the funds needed for their van or more; when they reach their goal, Jett Foundation will cover the remaining costs and coordinate purchase and delivery of the vehicle.

 

About Jett Giving Fund’s Accessible Vehicle Fund

Jett Giving Fund is Jett Foundation’s financial assistance program for families impacted by Duchenne muscular dystrophy who are in need of accessible vehicles or emergency support. As part of the Accessible Vehicle Fund, families fundraise half the funds needed or more for an accessible vehicle, and Jett Foundation covers the remaining costs once they reach their goal. 

If other resources have already been used to meet a specific need, if there is no longer a specific need, and/or if donations have been received in excess of a specific need, donations made in furtherance of a specific need will be applied for general purposes of the Jett Giving Fund. If the Jett Giving Fund no longer exists, all donations will be applied to further the general charitable mission of Jett Foundation.

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

Accessible Vehicle Fund Applications Open