Palmer-Hughey Family

Raising Funds for an Accessible Van

The Palmer-Hughey Family is from Atlanta, Georgia, and faces many challenges that come with having two boys diagnosed with Duchenne muscular dystrophy. Garnett Palmer (15) and David Hughey (5) were diagnosed with Duchenne at a young age. Garnett relies on a wheelchair to move about and David needs assistance when traveling for longer periods of time. Duchenne is a progressive neuromuscular disorder that causes a loss of motor, pulmonary, and cardiac function.

The boys are cared for by their single mother, LaToya, who has difficulty lifting the boys by herself and transporting them safely throughout their daily routine. LaToya has suffered injuries from caring for the boys and worries more as Garnett and David grow in size.

“Our family experiences isolation due to a lack of transportation to see friends and family,” shares LaToya. “We are struggling both physically and mentally, miss medical appointments, use unreliable public transportation or Lyft, and can’t get the kids to school on time.”

Garnett and David have not been able to connect with fellow peers, an important element to their mental health and social life as children. They also miss out on after school programs, accessible sports, and enjoying time with friends or family.

As participants in Jett Foundation’s Accessible Vehicle Fund branch of the Jett Giving Fund, the Palmer-Hughey Family will aim to raise half or more of the funds needed for their accessible vehicle before Jett Foundation steps in to cover the remaining costs and purchase the vehicle outright.

LaToya shares, “I want my kids to feel safe and I want them to be able to participate in what they love. An accessible vehicle allows me to give them just that, everyday.”

You can help Garnett and David attain the freedom and independence they deserve by contributing toward their fundraising goal below!

All donations to Jett Foundation are tax-deductible to the extent allowed under applicable law and is an unrestricted contribution to the Jett Giving Fund. The family is working to raise half the funds needed for their van or more; when they reach their goal, Jett Foundation will cover the remaining costs and coordinate purchase and delivery of the vehicle. 

Support Garnett and David with a donation today!

 

About Jett Giving Fund’s Accessible Vehicle Fund

Jett Giving Fund is Jett Foundation’s financial assistance program for families impacted by Duchenne muscular dystrophy who are in need of accessible vehicles or emergency support. As part of the Accessible Vehicle Fund, families fundraise half the funds needed or more for an accessible vehicle, and Jett Foundation covers the remaining costs once they reach their goal. 

If other resources have already been used to meet a specific need, if there is no longer a specific need, and/or if donations have been received in excess of a specific need, donations made in furtherance of a specific need will be applied for general purposes of the Jett Giving Fund. If the Jett Giving Fund no longer exists, all donations will be applied to further the general charitable mission of Jett Foundation.

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

Accessible Vehicle Fund Applications Open