Petz Family

Raising Funds for an Accessible Van

The Petz Family is originally from Boca Raton, Florida, and has recently moved to Bedford, New Hampshire. The family relocated so their son, Logan (12), can have better access to medical care for his Duchenne muscular dystrophy diagnosis. Duchenne is a progressive neuromuscular disorder that causes a loss of motor, pulmonary, and cardiac function.

Logan has three brothers, Mason (9), Miles (6), and Liam (4), and is cared for by his parents, Tim and Luciana. The family enjoys camping together, where Logan can venture throughout a large space with his brothers in a power chair. Together, they also enjoy playing video games and visiting family and friends in Florida. Logan, an old soul, loves visiting museums and historical sites.

Logan lost his ability to walk at the age of 10 due to Duchenne, forcing his parents to lift him around the home and in and out their vehicle when traveling. Luciana recently hurt her back while lifting Logan into the car for a therapy appointment and has struggled to safely give him the assistance he needs as he grows in size.

“Our family has to limit the outings we take with Logan to limit the stress it puts on all of our bodies,” says Luciana. “We must prioritize medical appointments and school but even that is becoming extremely difficult without an accessible vehicle.”

As participants in Jett Foundation’s Accessible Vehicle Fund branch of the Jett Giving Fund, the Petz Family will aim to raise half or more of the funds needed for their accessible vehicle before Jett Foundation steps in to cover the remaining costs and purchase the vehicle outright.

The family shares, “Logan has been dreaming of going to the supermarket and running errands with us, just like we used to. An accessible van would allow him to partake in family outings with all of his brothers once again.”

Thanks to generous donors and support from the community, the Petz Family has completed fundraising and has received their van!

All donations to Jett Foundation are tax-deductible to the extent allowed under applicable law and is an unrestricted contribution to the Jett Giving Fund. The family is working to raise half the funds needed for their van or more; when they reach their goal, Jett Foundation will cover the remaining costs and coordinate purchase and delivery of the vehicle.

 

About Jett Giving Fund’s Accessible Vehicle Fund

Jett Giving Fund is Jett Foundation’s financial assistance program for families impacted by Duchenne muscular dystrophy who are in need of accessible vehicles or emergency support. As part of the Accessible Vehicle Fund, families fundraise half the funds needed or more for an accessible vehicle, and Jett Foundation covers the remaining costs once they reach their goal. 

If other resources have already been used to meet a specific need, if there is no longer a specific need, and/or if donations have been received in excess of a specific need, donations made in furtherance of a specific need will be applied for general purposes of the Jett Giving Fund. If the Jett Giving Fund no longer exists, all donations will be applied to further the general charitable mission of Jett Foundation.

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

Accessible Vehicle Fund Applications Open