Toy Family

Fundraising for an Accessible Van

Daniel Toy (12) is a boy who splits his time living in Springfield and Drain, Oregon, making memories with with his mother Hannah, step-dad Bo, and brother Lukas, as well as his dad Tanner, step-mom Nichole, and brother Everett. Daniel lives with Duchenne muscular dystrophy and was diagnosed at just seven (7) years old. Duchenne is a progressive neuromuscular disorder that causes a loss of motor, pulmonary, and cardiac function.

“Daniel is not short on people who love and care about him. He has a village,” shares his mother, Hannah. “But about a year ago, Daniel stopped walking, so it has been incredibly difficult to get out of the house to see the people he loves most or to move back and forth between our houses. Lifting him in and out of cars is very uncomfortable for him. An accessible vehicle will bring back the joy he gets from visiting the people in his life.”

The family has also struggled to attend medical appointments due to the transportation barrier, and Daniel even attends school fully online.

Daniel finds an escape in video games to experience things digitally that others can in the physical world. He is a kind, loving, and optimistic 12-year-old who wants nothing more than to explore the world with his family. Hannah says, “When asked what his mom and dad can do to make his life easier and better, Daniel responds with, ‘Nothing, my life is perfect.’ Those words have more weight coming from a 12-year-old who, just months prior, had a fall, broke his leg, and stopped walking for the rest of his life. That is just the core of who Daniel is.”

When Daniel was diagnosed, the family turned to Facebook groups to find other families with Duchenne and explore organizations such as Jett Foundation. As participants in Jett Foundation’s Accessible Vehicle Fund branch of the Jett Giving Fund, the Toy Family will aim to raise half the funds needed, or more, for their accessible vehicle before Jett Foundation steps in to cover the remaining costs and purchase the vehicle outright.

“Not everyone is lucky enough to be blessed with a long life, but every single person deserves to experience a full life,” exclaims Hannah. “A life full of adventure and experiences. A life full of family and friends. That is what an accessible van will give to Daniel.”

Help Daniel attain freedom and independence! Please consider donating to the family’s Jett Giving Fund fundraiser today.

All donations to Jett Foundation are tax-deductible to the extent allowed under applicable law and is an unrestricted contribution to the Jett Giving Fund. The family is working to raise half the funds needed for their van or more; when they reach their goal, Jett Foundation will cover the remaining costs and coordinate purchase and delivery of the vehicle. Please note that your contribution will be combined with other Jett Giving Fund donations to ensure that each of the children in the Jett Giving Fund initiative benefit from your generosity.

 

About Jett Giving Fund’s Accessible Vehicle Fund

Jett Giving Fund is Jett Foundation’s financial assistance program for families impacted by Duchenne muscular dystrophy who are in need of accessible vehicles or emergency support. As part of the Accessible Vehicle Fund, families fundraise half the funds needed or more for an accessible vehicle, and Jett Foundation covers the remaining costs once they reach their goal. 

If other resources have already been used to meet a specific need, if there is no longer a specific need, and/or if donations have been received in excess of a specific need, donations made in furtherance of a specific need will be applied for general purposes of the Jett Giving Fund. If the Jett Giving Fund no longer exists, all donations will be applied to further the general charitable mission of Jett Foundation.

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

Accessible Vehicle Fund Applications Open