For most children and teenagers, Halloween is a long awaited evening of mischievous activity and ghastly fun. There is nothing quite like pulling on a spooky costume, skipping down the street, and trick or treating with buddies.
But, for families impacted by Duchenne, Halloween often highlights the heartbreaking decline in function that is characteristic of this disease. Parents witness their child struggle to do activities they could do last year, such as climbing the front stoops of neighborhood houses and holding full bags of candy. Because driveways, sidewalks, and houses are not handicap accessible, young people with Duchenne may have to wait for their friends and siblings at the end of a driveway or even stay at home.
You can help make Halloween easier for children and families with disorders like Duchenne.
This year, consider giving candy away at the bottom of your driveway, close to the sidewalk or street. If your driveway is smooth enough for wheelchairs, be sure to clear it of slippery wet leaves and rogue sticks to make sure it is safe for any and all ghouls and goblins, on wheels or on foot, who may stop by.