As a family that dedicates themselves to helping others, the Hoot family has faced their own struggles since their son, Ethan (11), was diagnosed with Duchenne muscular dystrophy eight years ago. Eleven-year-old Ethan bravely navigates childhood using a power wheelchair, relying on the unwavering love and support of his parents and sisters for daily tasks.
Duchenne is a progressive neuromuscular disorder causing a lack of motor, pulmonary, and cardiac function. Ethan is also hypermobile, which has accelerated the impact Duchenne has on his body. His parents, Nate and Joy, struggle to manually lift him in and out of the home and into their vehicle.
Jett Foundation’s Accessible Vehicle Fund branch of the Jett Giving Fund partners with families in the Duchenne community, like the Hoot Family, to purchase this expensive, yet vital item. Families aim to raise half or more of the funds needed for their vehicle before Jett Foundation covers the remaining expenses and coordinates the purchase.
A greater sense of safety and independence surrounds Ethan and his family today as their new accessible vehicle was delivered to them on May 18, 2024. The family was joined by members of their church community, friends, and Jett’s Director of Programs Alexa Tinsley.
“Having an accessible vehicle now enables Joy to drive Ethan to school and appointments,” shares the family. “Safety risks are now reduced while transferring Ethan and the van opens opportunities for our whole family to volunteer and serve together.”
Ethan adds, “The accessible van is finally my dream!”
To assist families impacted by Duchenne through the three branches of Jett Giving Fund, you can donate today or reach out to Maura Caroll, Director of Development, at [email protected] to learn more about sponsorship opportunities.
We are very grateful to our dedicated sponsors and donors who help make the Jett Giving Fund possible: Cure Dale’s Duchenne, Finn’s Friends, the Flatley Foundation, the Killian Family, Catalyst Pharmaceuticals, Kindness Over Muscular Dystrophy, Michael’s Cause, Ryan’s Quest, PJ’s Protocol, and Sarepta Therapeutics.
If you or someone you know is in need of support or would like more information on our Jett Giving Fund, please visit www.jettfoundation.org/giving-fund.
