Welcome Packet
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About Duchenne
Facts, Treatment, and Care
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Duchenne News
The latest from our partners.
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Female Carriers
Resources, Care, and Programs
Community Ambassadors
Meet our Community Ambassadors
Clinical Trials
A quick look at investigational drug studies
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer Today
Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Toolkits
View our resources targeted toward volunteers.
Our Resources
Become a Partner
Learn about creating a partnership and joining our community.
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Host a Webinar
Learn about our community webinar series.
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Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
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Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
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Book: Dan And DMD
This book will help parents and guardians as they prepare to talk to their children about Duchenne.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
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Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
About Female Carriers
Facts and information about female carriers.
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Resources for Carriers
Tools and materials for female carriers.
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Connect with our Specialist
Get support and help navigating your journey.
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
General Resources
Check out helpful tools and transition resources.
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Transition Resources
GotTransition resources and tools.
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Camp Promise
Locations and information on how to apply.
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Community Webinars
Watch past recordings on care and resource topics.
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Join us for a fun-filled evening that will bring together the local community for an evening of live music, a cornhole tournament, exciting raffles, and delicious beer flights at Crue Brew in Raynham, MA! All proceeds will benefit Jett Foundation, a local organization dedicated to empowering children and families facing Duchenne muscular dystrophy.
Door prize entry and beer flight ticket included with every $25 donation at the door.
Cornhole Tournament
$10 per team | Cash Prize | 6PM Start
*weather permitting
This event is fueled by the incredible efforts of Team Jett athletes, Alison Scagnelli and Tyler Diniz! They’re lacing up their shoes and hitting the pavement at the Falmouth Road Race this August, all in support of Jett Foundation’s mission.
A huge thank you for your generous consideration of sponsorship for this event supporting Jett Foundation! Your contribution directly helps families battling Duchenne muscular dystrophy. Please click the button below to complete your sponsorship online or email gabriella@jettfoundation.org for more options.
Sofie Lopes is a 21-year-old musician who grew up in New Bedford, MA where she began her musical journey. She has taught herself multiple instruments and musical genres and has performed with many bands and acoustic duos. She is currently involved in musical groups within and outside of her school scene. She is now at Bridgewater State University with a major of Music Education and a concentration in Classical Voice. She will be graduating in the Spring of 2025 and plans on becoming an elementary general music teacher.
Taylor Deas is a 23-year-old musician who grew up in Brockton, MA where he began his musical journey. He began on electric guitar and switched to classical when he began his college career. He is a recent graduate of Bridgewater State University with a major of Music Performance and a concentration in Classical Guitar. He was involved in many on campus music ensembles while at BSU including the pit band for one of the Theater Department’s shows: Spamalot. He also performed two solo recitals during his time at BSU. He plans on attending New England Conservatory in the Fall of 2025 to pursue his Masters Degree in Performance.
Tyler and Ali at last year’s Falmouth Road Race representing Team Jett
The entire Team Jett crew at the Falmouth Road Race 2023 start line
Jett Foundation, Inc.
65 Cordage Park Circle
Suite 130 | Plymouth, MA 02360
781-585-5566 | info@jettfoundation.org
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Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.