Community Webinar: Navigating Your Emotional Journey Following Genetic Diagnosis
Jett Foundation’s Community Webinar Series featuring Mary-Frances Garber, who will present on navigating your emotional journey following a genetic diagnosis, such as Duchenne muscular dystrophy.
Community Webinar: REGENXBIO AFFINITY DUCHENNE Pivotal Trial and Interim Functional Data
Tune in to Jett Foundation’s Community Webinar Series to hear from the team at REGENXBIO on their RGX-202 AFFINITY DUCHENNE Pivotal Trial and Interim Functional Data.
Community Webinar: NS Pharma Exon Skipping Trials Brogidirsen and NS-050/NCNP-03
NS Pharma will present information on two enrolling exon skipping clinical studies: a Phase II study evaluating Brogidirsen (exon 44) and a Phase I/II study evaluating NS-050/NCNP-03 (exon 50).
Community Webinar: Wave Life Sciences Interim Results from FORWARD-53 Study of WVE-N531
Wave will provide an overview of initial clinical trial results for WVE-N531 in individuals with Duchenne muscular dystrophy who are amenable to exon 53 skipping, as well as an overview of the potentially registrational FORWARD-53 study.
Community Webinar: Cardiac Devices
Tune in to hear from Andreas Barth on cardiac devices in Duchenne, Becker, and Carrier patients with an emphasis on implanted devices.
Community Webinar: Practical Applications of 3D Printing
Bruce Ward and Matt Bollinger share their experiences using 3D printing in everyday life.
Community Webinar: Solid Biosciences’ INSPIRE DUCHENNE Update and Study Expansion
Solid will provide an update on INSPIRE DUCHENNE, clinical trial for SGT-003, a next-generation microdystrophin gene therapy for individuals living with Duchenne muscular dystrophy.
Community Webinar: Canine Assistants
Tune in to hear from Jennifer Arnold on canine assistants and service dogs for individuals with Duchenne and rare diseases.
Navigating the Accessible Vehicle Fund Application Process
Hear from the Jett team on the ins and outs of the Accessible Vehicle Fund application process
Community Webinar: Fat Embolism Syndrome
Tune in to hear from Dr. Han Phan and Perlita Hains on fat embolism syndrome in individuals living with Duchenne muscular dystrophy.
Community Webinar: Behaviors in Carriers
Tune in to hear from Dr. Natalie Truba of Nationwide Children’s on behaviors in carriers of Duchenne muscular dystrophy.
Community Webinar: Debunking Tracheostomy Myths
Tune in to hear from Jonathon Truwit and DJ Kimble on myths around tracheostomies.
Community Webinar: Regional Palliative Care in the South
Tune in to hear from Rikki Hooper on palliative care for Duchenne muscular dystrophy in South Eastern United States.
