Welcome Packet
Been diagnosed or want to learn more?
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About Duchenne
Facts, Treatment, and Care
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Duchenne News
The latest from our partners.
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Transition Resources
GotTransition resources and tools.
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Community Ambassadors
Meet our Community Ambassadors
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Clinical Trials
A quick look at investigational drug studies
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Female Carriers
Resources, Care, and Programs
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Connect with our Carrier Specialist
Get support and help navigating your journey
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer Today
Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Team Jett
Activate your muscles at events to raise awareness and funds for the Duchenne community.
Join Team Jett
Become a Partner
Learn about creating a partnership and joining our community.
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Host a Webinar
Learn about our community webinar series.
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Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
Get Started Volunteering
Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
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Dan and DMD & Other Books
These books will help parents, guardians, and individuals as they navigate a Duchenne diagnosis and journey.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Download the Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
Join Jett Foundation’s Community Webinar Series to hear from Mary-Frances Garber on how to best navigate your emotional journey after a genetic diagnosis, such as Duchenne muscular dystrophy.
Navigating Your Emotional Journey Following Genetic Diagnosis
Thursday, March 13, 2025
1pm ET | 12pm CT | 11am MT | 10am PT
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Mary-Frances Garber is a board certified, licensed genetic counselor with a private practice, Listening, Reflecting, Healing, where she provides supportive genetic counseling and bereavement services. Her belief is that individuals and families need a place to process their emotions associated with their genetic issues. She worked as a prenatal genetic counselor in the Maternal Fetal Medicine department at Newton Wellesley Hospital and as a consultant with Genome Medical providing counseling for those with family histories or diagnoses of cancer and other conditions. Earlier in her career, she was the Executive Director for NERGG, Inc., The New England Regional Genetics Group and worked at Brigham and Women’s Hospital in the Antenatal Diagnostic Center. Mary-Frances attended the University of Rochester, graduating with a BS in Molecular Genetics, and Sarah Lawrence College where she earned a MS in Human Genetics. Mary-Frances is a member of the National Society of Genetic Counselors and has served as Region I Representative on the Board of Directors. In her spare time, MF enjoys being a mother to her three adult daughters and playing and coaching tennis.
Our Community Webinar Series is focused on ensuring that our Duchenne and rare disease community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.
No one ever expects Duchenne and there is no correct way to tackle a diagnosis, but we can always better prepare. This webinar series is an opportunity to equip yourself with more knowledge, resources, and tools for those real-life, often unanticipated, scenarios.
Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.