Facebook Instagram X-twitter Linkedin Youtube Spotify
Sports Fanatic Quiz
February 8, 2024
Porch Nite: Open Conversation
February 19, 2024

Community Webinar: PTC Therapeutics’ 2024 EMFLAZA® Landscape

When:
February 15, 2024 1:00PM

Join Jett Foundation’s Community Webinar Series on February 15 at 1PM EST as we welcome the team from PTC Therapeutics for a presentation and discussion on their EMFLAZA landscape for 2024.

PTC’s EMFLAZA Landscape 2024
Thursday, February 15, 2024
1pm ET | 12pm CT | 11am MT | 10am PT

 

Register
Frank Quintieri, Head of US Patient Relations, PTC

Guest Speaker

Frank has been with PTC for 5 years and leads the US Patient Engagement team that supports the DMD community. Frank has worked in the rare disease space for the past 19 years focusing on patient advocacy and support.

Teja Jayanthi, Head of US Marketing, PTC

Guest Speaker

Teja is the Head of US Marketing at PTC and has been in the DMD space for the last four years. He is a passionate advocate for rare disease patients having worked on three different rare disease product launches and works to ensure the PTC teams have the necessary resources and materials to support the patient community.

Greg Iovine, Head of PTC Cares Patient Support Program

Guest Speaker

Greg has been with PTC for 5 years and leads the PTC Cares team of case managers who help with access to Emflaza. Greg has been In the healthcare industry for over 13 years focusing on reimbursement and access services.

Community Webinar Series - Better preparing for challenges in Duchenne

Our Community Webinar Series is focused on ensuring that our Duchenne community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.

No one ever expects Duchenne and there is no correct way to tackle a diagnosis, but we can always better prepare. This webinar series is an opportunity to equip yourself with more knowledge, resources, and tools for those real-life, often unanticipated, scenarios.

Register Now

Experience the magic this summer!

Apply Today

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Register Today

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

Give Today

Accessible Vehicle Fund Applications Open

Apply Today