Welcome Packet
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About Duchenne
Facts, Treatment, and Care
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Duchenne News
The latest from our partners.
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Transition Resources
GotTransition resources and tools.
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Community Ambassadors
Meet our Community Ambassadors
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Clinical Trials
A quick look at investigational drug studies
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Female Carriers
Resources, Care, and Programs
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Connect with our Carrier Specialist
Get support and help navigating your journey
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
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Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Team Jett
Activate your muscles at events to raise awareness and funds for the Duchenne community.
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Become a Partner
Learn about creating a partnership and joining our community.
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Host a Webinar
Learn about our community webinar series.
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Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
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Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
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Dan and DMD & Other Books
These books will help parents, guardians, and individuals as they navigate a Duchenne diagnosis and journey.
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Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Download the Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
Join Jett Foundation’s Community Webinar Series on November 7 at 1PM EST as we welcome Celina Goncalves, PT, DPT, for a presentation and discussion on school accessibility and participation for individuals living with Duchenne muscular dystrophy.
School Accessibility and Participation
Tuesday, November 7, 2023
1:00pm ET | 12pm CT | 11am MT | 10am PT
Celina Goncalves is a physical therapist in The Duchenne Program at UMass Chan Medical School. She received her Doctor of Physical Therapy at Simmons University in 2020 and completed a one-year fellowship at The Duchenne Program under the direction of Dr. Brenda Wong from 2021-2022. Celina joined the program following work with neuroatypical student populations in the school setting.
For Celina, the best part of working with boys and young men with Duchenne is showing them the things they can do, with some help. “I love connecting with patients and families, advising them about how they can make everything as accessible as possible and giving them the tools to interact with their friends, family and community,” she says. “Even small changes can have a meaningful impact on everyday life.”
Our Community Webinar Series is focused on ensuring that our Duchenne community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.
No one ever expects Duchenne and there is no correct way to tackle a diagnosis, but we can always better prepare. This webinar series is an opportunity to equip yourself with more knowledge, resources, and tools for those real-life, often unanticipated, scenarios.
Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.