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Book: Dan And DMD
This book will help parents and guardians as they prepare to talk to their children about Duchenne.
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Join Jett Foundation’s Community Webinar Series on June 8 at 1PM EST as we welcome Dr. Diana Castro of the Neurology and Neuromuscular Care Center in Denton, TX for a presentation and discussion on transition of care in Duchenne.
Transition of Care in Duchenne
Thursday, June 8, 2023 | 1:00PM – 2:00PM EST
Dr. Castro, a board-certified neurologist and neuromuscular physician, as well as a pioneer in the research and management of patients with Spinal Muscular Atrophy (SMA), Duchenne muscular dystrophy (DMD), Myasthenia Gravis, and Acquired Neuropathies such as Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). Since completing training in pediatric neuromuscular medicine, Dr. Castro has conducted multiple clinical research trials in SMA, DMD, and Charcot-Marie-Tooth (CMT), among other conditions.
Being an intricate part of developing innovative therapies for rare neuromuscular conditions is one of her biggest passions, along with her strong bonds with all her patients and their families. This unique relationship with her patients drives her to continue searching for therapeutic options for them. In addition to managing a busy patient load and conducting research, Dr. Castro has had many peer-reviewed publications and book chapters and has given multiple national and international lectures in English and Spanish. She also sits on several national medical advisory boards and steering committees.
After more than ten years, Dr. Castro left academia to create a non-profit practice and research institute for neuromuscular conditions. The research institute opened in November 2022, and the non-profit neuromuscular practice in January 2023. They offer care to all neuromuscular patients, regardless of their insurance situation.
Our Community Webinar Series is focused on ensuring that our Duchenne community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.
No one ever expects Duchenne and there is no correct way to tackle a diagnosis, but we can always better prepare. This webinar series is an opportunity to equip yourself with more knowledge, resources, and tools for those real-life, often unanticipated, scenarios.
Jett Foundation, Inc.
65 Cordage Park Circle
Suite 130 | Plymouth, MA 02360
781-585-5566 | info@jettfoundation.org
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