Welcome Packet
Been diagnosed or want to learn more?
Request a Packet
About Duchenne
Facts, Treatment, and Care
Read More
Duchenne News
The latest from our partners.
Read Now
Female Carriers
Resources, Care, and Programs
Community Ambassadors
Meet our Community Ambassadors
Clinical Trials
A quick look at investigational drug studies
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer Today
Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Toolkits
View our resources targeted toward volunteers.
Our Resources
Become a Partner
Learn about creating a partnership and joining our community.
Get Started
Host a Webinar
Learn about our community webinar series.
View Upcoming Webinars
Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
Get Started Volunteering
Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
Read Now
Book: Dan And DMD
This book will help parents and guardians as they prepare to talk to their children about Duchenne.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Request a Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
About Female Carriers
Facts and information about female carriers.
Learn More
Resources for Carriers
Tools and materials for female carriers.
Read More
Connect with our Specialist
Get support and help navigating your journey.
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
General Resources
Check out helpful tools and transition resources.
Find Resources
Transition Resources
GotTransition resources and tools.
Learn More
Camp Promise
Locations and information on how to apply.
Learn More
Community Webinars
Watch past recordings on care and resource topics.
Watch Now
Join Jett Foundation’s Community Webinar Series on June 8 at 1PM EST as we welcome Dr. Diana Castro of the Neurology and Neuromuscular Care Center in Denton, TX for a presentation and discussion on transition of care in Duchenne.
Transition of Care in Duchenne
Thursday, June 8, 2023 | 1:00PM – 2:00PM EST
Dr. Castro, a board-certified neurologist and neuromuscular physician, as well as a pioneer in the research and management of patients with Spinal Muscular Atrophy (SMA), Duchenne muscular dystrophy (DMD), Myasthenia Gravis, and Acquired Neuropathies such as Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). Since completing training in pediatric neuromuscular medicine, Dr. Castro has conducted multiple clinical research trials in SMA, DMD, and Charcot-Marie-Tooth (CMT), among other conditions.
Being an intricate part of developing innovative therapies for rare neuromuscular conditions is one of her biggest passions, along with her strong bonds with all her patients and their families. This unique relationship with her patients drives her to continue searching for therapeutic options for them. In addition to managing a busy patient load and conducting research, Dr. Castro has had many peer-reviewed publications and book chapters and has given multiple national and international lectures in English and Spanish. She also sits on several national medical advisory boards and steering committees.
After more than ten years, Dr. Castro left academia to create a non-profit practice and research institute for neuromuscular conditions. The research institute opened in November 2022, and the non-profit neuromuscular practice in January 2023. They offer care to all neuromuscular patients, regardless of their insurance situation.
Our Community Webinar Series is focused on ensuring that our Duchenne community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.
No one ever expects Duchenne and there is no correct way to tackle a diagnosis, but we can always better prepare. This webinar series is an opportunity to equip yourself with more knowledge, resources, and tools for those real-life, often unanticipated, scenarios.
Jett Foundation, Inc.
65 Cordage Park Circle
Suite 130 | Plymouth, MA 02360
781-585-5566 | [email protected]
Sign up to receive our newsletter and updates.
Required fields are denoted with an asterisk (*)
Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.