The PERFECT LIFT
The PERFECT LIFT is a revolutionary, lightweight, and portable solution designed for everyone—from firefighters, EMS crews, and doctors to caregivers, teachers, event staff, coaches, and families. Whether you’re responding to an emergency or simply helping someone who’s fallen, this tool empowers 2 to 6 people to safely lift and transport individuals with ease and confidence.
Care for Skin from PPMD
Parent Project Muscular Dystrophy provides skin care guidelines for individuals living with Duchenne and Becker muscular dystrophy.
Healthcare Transition Timeline for Youth and Young Adults (Spanish)
Cronología para la transición de los servicios médicos para adolescentes y jóvenes adultos .
Emergency Care Considerations
Contact information, considerations, recommendations, and more about emergency care from Parent Project Muscular Dystrophy.
PJ’s Steroid Protocol
Steroid protocol designed to assist healthcare providers from the Nicholoff Family.
Fat Embolism Syndrome
An overview and important information on Fat Embolism Syndrome provided by Parent Project Muscular Dystrophy.
Occupational Therapy from Cure Duchenne
CureDuchenne offers a high level program of educational opportunities and resources for occupational therapists and allied healthcare professionals who treat those with Duchenne muscular dystrophy.
Physical Therapy (for Physical Therapists)
CureDuchenne offers a high level program of educational opportunities and resources for physical therapists and allied healthcare professionals who treat those with Duchenne muscular dystrophy.
Thriving With Duchenne Episode with Two Disabled Dudes Podcast
A Rare Disease Day podcast recording from the Two Disabled Dudes, Kyle Bryant and Sean Baumstark, who moderated Jett Foundation’s 2024 Rare Disease Day event.
Physicians Who Treat Female Carriers of Duchenne
A resource list of known physicians in the United States who treat and care for female carriers of Duchenne muscular dystrophy.
Duchenne Muscular Dystrophy Diagnosis and Care
PediaLink provides a course highlighting the specialty care and emerging therapies related to the care and management of DMD as well as the common issues affecting children with DMD and the significant role that pediatricians, other physicians, and non-physician clinicians have in caring for patients with DMD.
DMD Webinar Series from American Academy of Pediatrics
Through this webinar series, clinicians will be better informed about care consideration and emerging therapies related to the care and management of individuals with DMD
Overjoyed About Accessibility
Overjoyed is a new way to create and play digitally turning small mouse movements into key presses and other actions, allowing even people with low to no dexterity or movement to control their computer.
