Resource Library

Resources to extend and enrich the lives of individuals affected by Duchenne muscular dystrophy and other neuromuscular disorders.

Back to School

Families

Female Carriers

Individuals

Medical Professionals

Partners

Volunteers

Health Insurance Flight Plan

A guide to navigating the insurance process in Duchenne. This booklet will teach you the basics about insurance, including claims and denials.

Clinical Trial Flight Plan

This booklet guide will walk you through the basic steps of participating in a trial, key glossary terms, where to find clinical trials, and more.

Clinical Trial Cheat Sheet

For a quick look at enrolling or soon to be enrolling investigational drug studies in Duchenne and their enrollment criteria, check out Jett Foundation's Clinical Trial Cheat Sheet.

Mental Health & Wellness Resources

Families, Individuals

We’ve created a list of treatment centers, crisis hotlines, and health groups across the country to help you find support when you need it most.

The Zack Heger Foundation works to improve accessibility for individuals with disabilities. Founded by Zack’s parents, Rodney and Margie Heger, the foundation honors their son, who was diagnosed with Duchenne...

Rethinking Exercise in Duchenne Muscular Dystrophy: What New PT/OT Research Means for Families

Families, Individuals, Medical Professionals

CureDuchenne shares guidance, research, and resources surrounding "What New PT/OT Research Means for Families"

CureDuchenne Caregiver Course

Families, Medical Professionals

The CureDuchenne Caregiver Course is a free virtual resource for use by all who are affected by Duchenne and Becker muscular dystrophy and those who care for them. The following...

Overjoyed for Inclusion

Families, Individuals

Led by Jett Foundation Community Ambassador Anthony DeVergillo, the Overjoyed For Inclusion program combines technology and social fun with inclusion projects spanning video game accessibility, virtual events, music, cooking, and...

The PERFECT LIFT

Back to School, Families, Individuals, Medical Professionals

The PERFECT LIFT is a revolutionary, lightweight, and portable solution designed for everyone—from firefighters, EMS crews, and doctors to caregivers, teachers, event staff, coaches, and families. Whether you're responding to...

Welcome Packet

We invite all in the community to request our Welcome Packet, whether a newly diagnosed family, clinician, industry partner, family member, or friend, to learn more about Duchenne and available resources.

Programs

Events