Resource Library

Resources to extend and enrich the lives of individuals affected by Duchenne muscular dystrophy and other neuromuscular disorders.

Back to School

Families

Female Carriers

Individuals

Medical Professionals

Partners

Volunteers

Health Insurance Flight Plan

A guide to navigating the insurance process in Duchenne. This booklet will teach you the basics about insurance, including claims and denials.

Clinical Trial Flight Plan

This booklet guide will walk you through the basic steps of participating in a trial, key glossary terms, where to find clinical trials, and more.

Clinical Trial Cheat Sheet

For a quick look at enrolling or soon to be enrolling investigational drug studies in Duchenne and their enrollment criteria, check out Jett Foundation's Clinical Trial Cheat Sheet.

The PERFECT LIFT

Back to School, Families, Individuals, Medical Professionals

The PERFECT LIFT is a revolutionary, lightweight, and portable solution designed for everyone—from firefighters, EMS crews, and doctors to caregivers, teachers, event staff, coaches, and families. Whether you're responding to...

Accessible Van Giveaway – Muscular Dystrophy Family Foundation

Families, Individuals

The application is open from December 1st, 2025 to February 15th, 2026. Applicants must meet eligibility criteria found on their website.

Wheelchairs 4 Kids Programs

Families, Individuals

Wheelchairs 4 Kids recently launched two new programs to further support the incredible children and families they serve: Tuition Scholarship Program This initiative is designed to help our Wheel Kids...

Whole-Body Skeletal Muscle MRI Patterns in Female Dystrophinopathy Carriers

Female Carriers

From Neurology Genetics, a peer-reviewed clinical and translational neurology open access journal.

Care for Skin from PPMD

Families, Individuals, Medical Professionals

Parent Project Muscular Dystrophy provides skin care guidelines for individuals living with Duchenne and Becker muscular dystrophy.

Community Webinar: Myths Around IEPs and 504 Plans

Back to School, Families

Jett Foundation's Community Webinar: Myths Around IEPs and 504 Plans

Welcome Packet

We invite all in the community to request our Welcome Packet, whether a newly diagnosed family, clinician, industry partner, family member, or friend, to learn more about Duchenne and available resources.