Welcome Packet
Been diagnosed or want to learn more?
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About Duchenne
Facts, Treatment, and Care
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Duchenne News
The latest from our partners.
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Transition Resources
GotTransition resources and tools.
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Community Ambassadors
Meet our Community Ambassadors
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Clinical Trials
A quick look at investigational drug studies
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Female Carriers
Resources, Care, and Programs
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Connect with our Carrier Specialist
Get support and help navigating your journey
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
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Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Team Jett
Activate your muscles at events to raise awareness and funds for the Duchenne community.
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Become a Partner
Learn about creating a partnership and joining our community.
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Host a Webinar
Learn about our community webinar series.
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Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
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Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
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Dan and DMD & Other Books
These books will help parents, guardians, and individuals as they navigate a Duchenne diagnosis and journey.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Download the Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
For the past eight years, Jett Foundation has hosted this annual community event. After several years of virtual events, we are thrilled to bring the community back together for an in-person luncheon event in Quincy, MA.
September 6, 2025 | 11:00AM–2:30PM
Marriott Boston Quincy
1000 Marriott Dr, Quincy, MA
Check-in, t-shirts, mingling, and family fun!
Luncheon begins.
Speaking program featuring keynote speakers.
A Jett Foundation WDAD tradition! Join us on the patio for a big community photo.
Kevin Counterman, DO, is a neurology resident at Walter Reed National Military Medical Center in Bethesda, Maryland. He earned his medical degree from the University of New England College of Osteopathic Medicine in 2023, following his undergraduate studies at Northeastern University.
Originally from Canton, Massachusetts, Kevin’s older brother, Michael, had Duchenne muscular dystrophy, and Michael’s involvement with the Jett Foundation has shaped Dr. Counterman’s clinical and personal interests. Outside of medicine, he enjoys reading and writing, and is the author of the self-published book, Breakfall, centered on his brother’s experiences with Duchenne. In his free time, he enjoys spending time with his wife, Kathy, as well as their dog, Luka, and cat, Ellie.
Matthew Stelmach is a dedicated business professional and proud graduate of Worcester State University with a bachelor’s degree in Business Administration. As the Business Administrator for Advanced Energy Concepts, Matt brings organization, problem-solving skills, and a strong work ethic to every project. Living with Duchenne muscular dystrophy, he approaches life with resilience, heart, and determination, never letting challenges define his limits.
Beyond his professional achievements, Matt’s world revolves around what truly matters: his family, his friends, and the music that inspires him daily. Whether connecting with loved ones or finding energy in a great song, he values the people and passions that make his life filled with meaning and love.
Check out our virtual opportunities by visiting the main World Duchenne Awareness Day page at jettfoundation.org/wdad.
Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.