Community Webinar: Jett Foundation 2026 Programs for Duchenne Community
Jett Foundation has many programs to support the Duchenne community in 2026! We invite you to listen in on January 29, 2026 at 1PM ET to learn more about programs such as the Jett Giving Fund, Camp Promise, educational workshops and Community Webinars, Family Support Groups, and more. Jett Foundation 2026 Programs to Support Duchenne […]
Community Webinar: Healthy and Balanced Nutrition Choices
We invite you to tune in to Jett Foundation’s Community Webinar Series on December 4, 2025, to hear from Marla Mungovan, RDN, LDN, CDCES, on nutrition with Duchenne muscular dystrophy. Marla will touch on traveling with feeding tubes, healthy meal options, and more. Community Webinar: Healthy and Balanced Nutrition Choices December 4, 2025 | 1pm […]
Community Webinar: Understanding the Clinical Trial Journey
NEW DATE: December 12, 2025 – Hop on Zoom to hear from medical professionals in the Duchenne space on the clinical trial process for individuals and families impacted by Duchenne muscular dystrophy and rare diseases. Jett Foundation’s Community Webinars are free to join and we encourage all to ask questions. From Molecule to Market: Understanding […]
Community Webinar: Child Life Specialists and Fostering Well-Being
Join Jett Foundation for our upcoming Community Webinar, Child Life Specialists: Fostering Well-being in the Context of Duchenne. During this webinar, Andrea Lerude will explore the vital role Child Life Specialists play in supporting the emotional and developmental needs of children and families navigating Duchenne muscular dystrophy. Learn how these professionals help reduce stress, build […]
Community Webinar: Navigating the Accessible Vehicle Fund Application Process
The Jett team will walk through the application process, eligibility requirements, and more.
Community Webinar: Endocrine Issues and Bone Health
We invite you to tune in to Jett Foundation’s Community Webinar Series on August 21, 2025 at 1pm ET to hear from Jaclyn Tamaroff of Vanderbilt University Medical Center on endocrine issues and bone health in Duchenne and rare diseases. Community Webinar: Endocrine Issues and Bone Health August 21, 2025 | via Zoom 1pm ET […]
Community Webinar: Gastrointestinal Issues and Colostomies
Tune in to Jett Foundations Community Webinar Series to hear from Dr. Kent Williams on Gastrointestinal Issues and Colostomies.
Community Webinar: The Vamorolone Summit Study
Join us for an informative webinar with Dr Nadeem Khaliq of Catalyst and Dr Kaitlin Batley of Children’s Health Specialty Center, Dallas.
Community Webinar: Pressure Ulcer Prevention and Treatment
Tune in to hear from Dr. David German and Danielle Dwiggins, RN, BSN and mom to a son living with Duchenne, who will speak on pressure ulcer prevention and treatment.
Community Webinar: Topline Data from EXPLORE44® Clinical Trial
Tune in on the first of May to hear from the team at Avidity Biosciences on topline data from their EXPLORE44® clinical trial, which is assessing the safety and efficacy of the investigational therapy delpacibart zotadirsen (formerly AOC 1044, abbreviated as del-zota) in people living with Duchenne muscular dystrophy mutations amenable to exon 44 skipping […]
Community Webinar: Opportunities for Financial Autonomy & Independence Through ABLE Accounts
Tune into a discussion around ABLE (Achieving a Better Life Experience) accounts and how they can help families managing the financial challenges of Duchenne muscular dystrophy.
Clinical Impact of FORCETM Platform in Duchenne
Please join us during our Community Webinar Series on April 17th as we welcome the team from Dyne Therapeutics to speak on updates to the DELIVER trial of DYNE-251 in males with Duchenne mutations amenable to exon 51 skipping. Clinical Impact of FORCETM Platform in Duchenne April 17, 2025 | 1pm ET| Zoom
Community Webinar: Targeting Bone Health in Duchenne (SHIELD DMD)
Jett Foundation’s Community Webinar Series with a presentation from Dr. Maitea Guridi on Roche’s SHIELD DMD and targeting bone health in Duchenne muscular dystrophy.
