Welcome Packet
Been diagnosed or want to learn more?
Request a Packet
About Duchenne
Facts, Treatment, and Care
Read More
Duchenne News
The latest from our partners.
Read Now
Transition Resources
GotTransition resources and tools.
Learn More
Community Ambassadors
Meet our Community Ambassadors
Read Now
Clinical Trials
A quick look at investigational drug studies
Read More
Female Carriers
Resources, Care, and Programs
Learn More
Connect with our Carrier Specialist
Get support and help navigating your journey
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer Today
Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Team Jett
Activate your muscles at events to raise awareness and funds for the Duchenne community.
Join Team Jett
Become a Partner
Learn about creating a partnership and joining our community.
Get Started
Host a Webinar
Learn about our community webinar series.
View Upcoming Webinars
Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
Get Started Volunteering
Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
Read Now
Dan and DMD & Other Books
These books will help parents, guardians, and individuals as they navigate a Duchenne diagnosis and journey.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Download the Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
On April 5 at 1pm ET, Jett Foundation welcomes Jill Anne Castle, M.Ed., for a Community Webinar on the myths around Individual Education Plans and 504 plans.
Myths Around IEPs and 504 Plans
Wednesday, April 5, 2023
1pm ET | 12pm CT | 11am MT | 10am PT
Â
Jill Anne Castle has an abundance of experience in Education and Healthcare Advocacy, IDEA ’04 and Special Education Processes, 504 and Civil Rights, Transition to Adulthood, Assistive Technology, and much more related to special education, accessible education, and plans and details that are required for students in schools.
Jill is an Adjunct Professor at Arizona State University within the Mary Lou Fulton Teacher’s College. Her teachings have emphasis on Special Education, Inclusion, Collaboration, Mediation, Behavior, and Assistive Technology. Jill has previously held roles as Special Education Director at MGRM Pinnacle Charters and as Director of her own consulting company that held social skills camps for at-risk and special needs youth, advocated for special education IEPs, offered mediation services, and more.
Our Community Webinar Series is focused on ensuring that our Duchenne community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.
No one ever expects Duchenne and there is no correct way to tackle a diagnosis, but we can always better prepare. This webinar series is an opportunity to equip yourself with more knowledge, resources, and tools for those real-life, often unanticipated, scenarios.
Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.