Jett Giving Fund Media Guide

Your toolkit for spreading the word in your local community!

As participants of the Jett Giving Fund program, we encourage you to engage with us on social media. Please use the following as a guide for our mission, logos, social media platforms and hashtags. We have also included the language we ask you to use when speaking about Jett Foundation and our Jett Giving Fund program online and in your communities.

Jett Foundation’s Mission

Our mission at Jett Foundation is to extend and enrich the lives of individuals affected by Duchenne muscular dystrophy and other neuromuscular disorders.

We fulfill this mission by partnering with individuals and families through empowering educational programming, transformational direct service experiences, and by accelerating the development of life-changing treatments.

About Jett Giving Fund

Jett Foundation established the Jett Giving Fund in 2017 to assist families impacted by Duchenne muscular dystrophy in purchasing unaffordable, but vital medical and accessibility equipment. When accepted into the program, families raise half the funds needed for their equipment. Once families reach their goal, Jett Foundation steps in to purchase the item they need and coordinate delivery.

Health insurance often won’t cover all specialized medical and accessibility equipment such as scooters, shower chairs, ramps, rotational beds, and accessible vans–items needed when tackling a progressive neuromuscular disorder like Duchenne. Without these necessities, those with Duchenne struggle to participate in the kinds of activities that most people take for granted, such as getting to and from school, or going out with friends.

In 2020, Jett Foundation expanded the Jett Giving Fund program to assist the emergent needs of families experiencing hardship as a result of the COVID-19 pandemic. We heard directly from families and it became clear that our Duchenne community needed more support to sustain life’s necessities during the unexpected global crisis. As a result, in 2021 will will be providing grants to families facing emergency situations, educational hardships, and more in addition to our traditional areas of support through the Jett Giving Fund.

About Duchenne

Duchenne (pronounced dü-shen) muscular dystrophy (DMD) is the most common fatal pediatric disorder. Duchenne is a progressive neuromuscular disorder that causes a loss of motor, pulmonary, and cardiac function, and ultimately, premature death. Children with Duchenne are born seemingly healthy and decline over time, typically losing their ability to walk around the age of 12 and succumbing to the disease in their early to mid-twenties. Duchenne has no cure.

Fast Facts

  • There are approximately 15,000 individuals living with Duchenne in the USA.
  • 2,000 individuals and families impacted by Duchenne and other neuromuscular disorders turn to Jett Foundation annually for knowledge, support, and friendship through programs like Camp Promise, Jett Giving Fund, Educational Workshops and Webinars, Family Support Groups, and more.
  • 52% of Camp Promise participants are ineligible to join other camp experiences due to age restrictions at other camps.
  • Accessible equipment, like accessible vehicles, are often not covered by health insurance, making critical items financially out of reach for many families.
  • Duchenne impacts the whole family. Parents, siblings, relatives, and friends often don’t get the support they need to navigate a diagnosis alongside their loved one.
  • Duchenne still has no cure. But, there is so much hope. Research and advocacy work have helped increase treatment options and show promising results.

Engaging The Media

Sharing your story with your local newspaper or TV station is a helpful way to spread the word about your Jett Giving Fund fundraising! If you plan to reach out to your local news media, please connect with Gabby Costa ([email protected]) from our team who can help support your efforts, review press releases, and provide information to reporters about the program.

Sample General Purpose Press Release

Sample Fundraising Event Press Release

Links & Resources

Jett Foundation’s Social Handles: Facebook | Instagram | Twitter | LinkedIn

Jett Foundation Hashtags: #FightDMDTogether, #StrongerThanDuchenne, #Duchenne, #JettGivingFund

Jett Foundation Logos: Red PNG | Red PNG with tagline | Black PNG | White PNG

Experience the magic this summer!

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

Accessible Vehicle Fund Applications Open