Jett Foundation is feeling all the love - thank you! Our month-long campaign to collect #HugsForDuchenne is half way through - we have collected 235 hugs through photos on Instagram and twitter and though our hugfunders.com website. A huge thank you goes out to our sponsors - ICUC Social, Wahlburgers, Novara, Abby Park, and Station Eight who have all donated dollars to match each hug.
Today is the first anniversary of the FDA approval of Exondys 51.
Congratulations Gals for Cal, on finishing the Hopkinton Title 9 Women Only Triathlon! 70 for the toughest women we know, most of whom are personally impacted by Duchenne, swam, biked, and ran for on Sunday, September 10th, those who can't.
Jett Foundation is delighted to announce our second Jett Giving Success story! Earlier this week, we gifted 12-year-old Aidan Braswell a stair lift for his home in Wylie, Texas. This van will help Aidan, who is in a power chair, safely travel to doctor's appointments, friends and family's houses, and to school, and it will help Aidan remain as independent as possible despite living with Duchenne muscular dystrophy.
We’re excited to announce that Jett Foundation is collecting hugs - again, for kids born with Duchenne muscular dystrophy.
Our mission is simple: Keep them hugging.
Medical and accessibility equipment can be expensive, and sometimes it isn't fully covered by insurance. Resources are limited for families affected by Duchenne who need medical and accessibility equipment, but posted below are Jett programs and other foundations that are dedicating to equipment to families and individuals affected by Duchenne.
A higher education is key to living independently, broadening horizons, and developing life-long relationships with others. While going to college with Duchenne has it's challenges, we know that young adults living with Duchenne can overcome any obstacle. Check out our resources and recommendations on how to prepare for and pay for your college education.