Blog Category: Announcements

Jett Foundation is pleased to share our continued support of The Duchenne Program at UMass Medical School in Worcester, MA in partnership with Charley’s Fund.

Earlier this year, on May 4th, Jett Foundation hosted Social Security 101 with John Johnston, Public Affairs Specialist at SSA, as part of our Community Webinar Series.

Join us in welcoming the newest member of our team, Alexa Tinsley! Alexa is so excited to take on her new role as Director of Community Engagement at Jett Foundation. Alexa has always been passionate about non-profit work and the neuromuscular community.

Dear Duchenne Community, I am writing today to inform you that our Director of Community Engagement, Danielle Edwards will be leaving Jett Foundation as of October 20, 2021.

Elijah is also a 20-year-old young man who lives with Duchenne muscular dystrophy, with a mission to minimize human suffering and propel human prosperity fueling his ambition to cure his disease.

For the past several years, Jett Foundation has hosted an annual World Duchenne Awareness Day (WDAD) event of celebration and remembrance in the Boston area, the epicenter for rare disease research. Once again we were able to take the opportunity to broaden our celebration beyond our traditional Boston area event and engage with our families and partners all across the country virtually.

Jett Foundation, a non-profit organization dedicated to raising awareness and funds for Duchenne muscular dystrophy (DMD), will be cheering on their Gals for Cal triathlon team at the Max Performance Title 9 Triathlon in Hopkinton, MA on Sunday, September 12, 2021.

Brian Nicholoff has been involved in the Duchenne community since 1987, when his son PJ was diagnosed with Duchenne muscular dystrophy at the age of 4. Brian also has another son, Justin, who is 34-years-old and has a milder case of DMD.

Jett Foundation is calling for the help of our families, friends, and supporters. Join us for our 20th Anniversary Go! for Duchenne Virtual Challenge!

With a full week of sales and online deals, one thing was missing for Jett Foundation: the voice of the talented, funny, hard-working community members that we serve.

Looking to give back this holiday season? We have some good news with relation to supporting charitable causes you and your family care about.