Resources

Thriving With Duchenne Episode with Two Disabled Dudes Podcast

Families, Female Carriers, Individuals, Medical Professionals

A Rare Disease Day podcast recording from the Two Disabled Dudes, Kyle Bryant and Sean Baumstark, who moderated Jett Foundation's 2024 Rare Disease Day event.

Physicians Who Treat Female Carriers of Duchenne

Female Carriers, Medical Professionals

A resource list of known physicians in the United States who treat and care for female carriers of Duchenne muscular dystrophy.

Duchenne Muscular Dystrophy Diagnosis and Care

Medical Professionals

PediaLink provides a course highlighting the specialty care and emerging therapies related to the care and management of DMD as well as the common issues affecting children with DMD and...

DMD Webinar Series from American Academy of Pediatrics

Medical Professionals

Through this webinar series, clinicians will be better informed about care consideration and emerging therapies related to the care and management of individuals with DMD

Overjoyed About Accessibility

Families, Individuals, Medical Professionals

Overjoyed is a new way to create and play digitally turning small mouse movements into key presses and other actions, allowing even people with low to no dexterity or movement...

Six Core Elements of HealthCare Transition: Transitioning Youth to an Adult Health Care Clinician

Medical Professionals

Got Transition packages and tips for Internal Medicine, Family Medicine, and Med-Peds Clinicians on transitioning children and young adults to adult clinicians.

Welcome Packet

We invite all in the community to request our Welcome Packet, whether a newly diagnosed family, clinician, industry partner, family member, or friend, to learn more about Duchenne and available resources.