Resources

Families

Female Carriers

Individuals

Medical Professionals

Partners

Volunteers

Emergency Care Considerations

Families, Individuals, Medical Professionals

Contact information, considerations, recommendations, and more about emergency care from Parent Project Muscular Dystrophy.

PJ’s Steroid Protocol

Families, Medical Professionals

Steroid protocol designed to assist healthcare providers from the Nicholoff Family.

Fat Embolism Syndrome

Families, Individuals, Medical Professionals

An overview and important information on Fat Embolism Syndrome provided by Parent Project Muscular Dystrophy.

Occupational Therapy from Cure Duchenne

Medical Professionals

CureDuchenne offers a high level program of educational opportunities and resources for occupational therapists and allied healthcare professionals who treat those with Duchenne muscular dystrophy.

Physical Therapy (for Physical Therapists)

Medical Professionals

CureDuchenne offers a high level program of educational opportunities and resources for physical therapists and allied healthcare professionals who treat those with Duchenne muscular dystrophy.

Thriving With Duchenne Episode with Two Disabled Dudes Podcast

Families, Female Carriers, Individuals, Medical Professionals

A Rare Disease Day podcast recording from the Two Disabled Dudes, Kyle Bryant and Sean Baumstark, who moderated Jett Foundation's 2024 Rare Disease Day event.

Welcome Packet

We invite all in the community to request our Welcome Packet, whether a newly diagnosed family, clinician, industry partner, family member, or friend, to learn more about Duchenne and available resources.